Design, set-up and utility of the UK facioscapulohumeral muscular dystrophy patient registry
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The UK Myotonic Dystrophy Patient Registry: facilitating and accelerating clinical researchRespiratory involvement in ambulant and non-ambulant patients with facioscapulohumeral muscular dystrophySurgical correction of hyperlordosis in facioscapulohumeral muscular dystrophy: A case report.Natural History, Trial Readiness and Gene Discovery: Advances in Patient Registries for Neuromuscular Disease.Exploring patient and family involvement in the lifecycle of an orphan drug: a scoping review.Chronic pain has a strong impact on quality of life in facioscapulohumeral muscular dystrophy.National information system for rare diseases with an approach to data architecture: A systematic reviewImpact of biobanks on research outcomes in rare diseases: a systematic review
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Design, set-up and utility of the UK facioscapulohumeral muscular dystrophy patient registry
description
article científic
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article scientifique
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articolo scientifico
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artigo científico
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bilimsel makale
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scientific article published on 09 May 2016
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vedecký článok
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vetenskaplig artikel
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videnskabelig artikel
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vědecký článek
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name
Design, set-up and utility of ...... lar dystrophy patient registry
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Design, set-up and utility of ...... ar dystrophy patient registry.
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Design, set-up and utility of ...... lar dystrophy patient registry
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Design, set-up and utility of ...... ar dystrophy patient registry.
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Design, set-up and utility of ...... lar dystrophy patient registry
@en
Design, set-up and utility of ...... ar dystrophy patient registry.
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P2093
P2860
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Design, set-up and utility of ...... lar dystrophy patient registry
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David Hilton-Jones
Debbie Smith
Fiona Norwood
Judith Hudson
Karen Rafferty
Libby Wood
Maggie Williams
Michela Guglieri
Peter Lunt
Richard Orrell
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P2888
P304
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10.1007/S00415-016-8132-1
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2016-05-09T00:00:00Z