Telethon Network of Genetic Biobanks: a key service for diagnosis and research on rare diseases.
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The challenge for a European network of biobanks for rare diseases taken up by RD-ConnectThe alliance between genetic biobanks and patient organisations: the experience of the telethon network of genetic biobanksPrioritizing Approaches to Engage Community Members and Build Trust in Biobanks: A Survey of Attitudes and Opinions of Adults within Outpatient Practices at the University of MarylandRD-Connect: an integrated platform connecting databases, registries, biobanks and clinical bioinformatics for rare disease research.The EuroBioBank Network: 10 years of hands-on experience of collaborative, transnational biobanking for rare diseasesImplementation and Outcomes of a Collaborative Multi-Center Network Aimed at Web-Based Cognitive Training - COGWEB Network.The RD-Connect Registry & Biobank Finder: a tool for sharing aggregated data and metadata among rare disease researchers.Impact of biobanks on research outcomes in rare diseases: a systematic review
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Telethon Network of Genetic Biobanks: a key service for diagnosis and research on rare diseases.
description
article científic
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article scientifique
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articolo scientifico
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artigo científico
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bilimsel makale
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scientific article published on 30 August 2013
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vedecký článok
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vetenskaplig artikel
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videnskabelig artikel
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vědecký článek
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name
Telethon Network of Genetic Bi ...... and research on rare diseases.
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Telethon Network of Genetic Bi ...... and research on rare diseases.
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Telethon Network of Genetic Bi ...... and research on rare diseases.
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Telethon Network of Genetic Bi ...... and research on rare diseases.
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Telethon Network of Genetic Bi ...... and research on rare diseases.
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Telethon Network of Genetic Bi ...... and research on rare diseases.
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Telethon Network of Genetic Bi ...... and research on rare diseases.
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Chiara Baldo
Francesca Dagna Bricarelli
Giuseppe Merla
Luisa Politano
Mirella Filocamo
Telethon Network of Genetic Biobanks Staff
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10.1186/1750-1172-8-129
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2013-08-30T00:00:00Z
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1015777598