Supporting family adaptation to presymptomatic and "untreatable" conditions in an era of expanded newborn screening

Supporting family adaptation to presymptomatic and "untreatable" conditions in an era of expanded newborn screening

Item
http://www.wikidata.org/entity/Q37292534
Fragile X protein in newborn dried blood spotsDisclosing Secondary Findings from Pediatric Sequencing to Families: Considering the "Benefit to Families"Evaluating Harms in the Assessment of Net Benefit: A Framework for Newborn Screening Condition Review.Introduction to the special issue: psychological aspects of genomics and child healthCommentary: trailblazing a research agenda at the interface of pediatrics and genomic discovery--a commentary on the psychological aspects of genomics and child healthSystematic review of psychosocial benefits and harms of genetic testing.Expanding newborn screening for lysosomal disorders: opportunities and challenges.Implications of newborn screening for nurses.Parental preferences toward genomic sequencing for non-medically actionable conditions in children: a discrete-choice experiment.Psychosocial impact on mothers receiving expanded newborn screening results.A blueprint for maternal and child health primary care physician education in medical genetics and genomic medicine: recommendations of the United States secretary for health and human services advisory committee on heritable disorders in newborns aBenefits and burdens of newborn screening: public understanding and decision-making
P2860

Supporting family adaptation to presymptomatic and "untreatable" conditions in an era of expanded newborn screening

Item
http://www.wikidata.org/entity/Q37292534
description
article científic
@ca
article scientifique
@fr
articolo scientifico
@it
artigo científico
@pt
bilimsel makale
@tr
scientific article published on 30 March 2008
@en
vedecký článok
@sk
vetenskaplig artikel
@sv
videnskabelig artikel
@da
vědecký článek
@cs
name
Supporting family adaptation t ...... of expanded newborn screening
@en
Supporting family adaptation t ...... of expanded newborn screening.
@nl
type
label
Supporting family adaptation t ...... of expanded newborn screening
@en
Supporting family adaptation t ...... of expanded newborn screening.
@nl
prefLabel
Supporting family adaptation t ...... of expanded newborn screening
@en
Supporting family adaptation t ...... of expanded newborn screening.
@nl
P1433
P1476
P2093
P2860
P304
P31
P356
P433
P478
P577
P5875
P698
P932
P356
P1433
P1476
Supporting family adaptation t ...... of expanded newborn screening
@en
P2093
P2860
P304
P31
P356
P433
P478
P577
P5875
P698
P932