Return of whole-genome sequencing results in paediatric research: a statement of the P3G international paediatrics platform.
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P(3)G - 10 years of toolbuilding: From the population biobank to the clinicFeedback of Individual Genetic Results to Research Participants: Is It Feasible in Europe?The ethics weathervaneTo disclose, or not to disclose? Context matters.Return of genomic results to research participants: the floor, the ceiling, and the choices in between.Returning incidental findings from genetic research to children: views of parents of children affected by rare diseases"We don't know her history, her background": adoptive parents' perspectives on whole genome sequencing resultsChallenges in Studying Modifiable Risk Factors for Birth DefectsInternational Policies on Sharing Genomic Research Results with Relatives: Approaches to Balancing Privacy with Access.Ethical Considerations for the Return of Incidental Findings in Ophthalmic Genomic Research.Regulating biobanking with children's tissue: a legal analysis and the experts' viewRaising Genomic Citizens: Adolescents and the Return of Secondary Genomic Findings.Lay Attitudes Toward Trust, Uncertainty, and the Return of Pediatric Research Results in BiobankingPaediatric biobanking: Dutch experts reflecting on appropriate legal standards for practice.Defining and managing incidental findings in genetic and genomic practice.Ethical perspectives on translational pharmacogenetic research involving children.Return of genetic testing results in the era of whole-genome sequencing.Choices for return of primary and secondary genomic research results of 790 members of families with Mendelian disease.Next-Generation Sequencing and the Return of Results.The Use of Next-Generation Sequencing for Research and Diagnostics for Intellectual Disability.The right to an open future concerning genetic information.Next-generation diagnostics: gene panel, exome, or whole genome?Cancer patients' intentions towards receiving unsolicited genetic information obtained using next-generation sequencing.Pediatric Issues in Return of Results and Incidental Findings: Weighing Autonomy and Best Interests.Preventive Genomic Sequencing and Care of the Individual Patient.Statement of principles on the return of research results and incidental findings in paediatric research: a multi-site consultative process
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Return of whole-genome sequencing results in paediatric research: a statement of the P3G international paediatrics platform.
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article científic
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article scientifique
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articolo scientifico
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artigo científico
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bilimsel makale
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scientific article published on 07 August 2013
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vedecký článok
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vetenskaplig artikel
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videnskabelig artikel
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vědecký článek
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Return of whole-genome sequenc ...... national paediatrics platform.
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Return of whole-genome sequenc ...... national paediatrics platform.
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Return of whole-genome sequenc ...... national paediatrics platform.
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Return of whole-genome sequenc ...... national paediatrics platform.
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Return of whole-genome sequenc ...... national paediatrics platform.
@en
Return of whole-genome sequenc ...... national paediatrics platform.
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Return of whole-genome sequenc ...... national paediatrics platform.
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P3G International Paediatrics Platform Members
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10.1038/EJHG.2013.176
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2013-08-07T00:00:00Z