Challenges of patient-reported outcome assessment in hemophilia care—a state of the art review.
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Estimates of utility weights in hemophilia: implications for cost-utility analysis of clotting factor prophylaxisHealth-related quality of life questionnaires in individuals with haemophilia: a systematic review of their measurement properties.Psychometric properties of the Greek Haem-A-QoL for measuring quality of life in Greek haemophilia patients.Content comparison of haemophilia specific patient-rated outcome measures with the international classification of functioning, disability and health (ICF, ICF-CY).The challenge of pain evaluation in haemophilia: can pain evaluation and quantification be improved by using pain instruments from other clinical situations?An overview of current trends and gaps in patient-reported outcome measures used in haemophilia.The burden and management of FXIII deficiency.Cross-cultural adaptation and linguistic validation of age-group-specific haemophilia patient-reported outcome (PRO) instruments for patients and parents.Registry-based outcome assessment in haemophilia: a scoping study to explore the available evidence.Recognizing the need for personalization of haemophilia patient-reported outcomes in the prophylaxis era.Outcome measures in European patients with haemophilia: Survey of implementation in routine clinical practice, perception of relevance and recommendations by European treaters in the EHTSB.Construct validity of patient-reported outcome instruments in US adults with hemophilia: results from the Pain, Functional Impairment, and Quality of life (P-FiQ) study.Health-related quality of life in hemophilia: results of the Hemophilia-Specific Quality of Life Index (Haem-a-Qol) at a Brazilian blood centerQuality of life in women with bleeding disorders.Haemophilia & Exercise Project (HEP): subjective and objective physical performance in adult haemophilia patients--results of a cross-sectional study.Health-related quality of life and psychological well-being in elderly patients with haemophilia.Assessment of healthcare measures, healthcare resource use, and cost of care among severe hemophilia A patients in Mumbai region of India.Why should we care about quality of life in persons with haemophilia?Evaluation of early musculoskeletal disease in patients with haemophilia: results from an expert consensus
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P2860
Challenges of patient-reported outcome assessment in hemophilia care—a state of the art review.
description
article científic
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article scientifique
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articolo scientifico
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artigo científico
@pt
bilimsel makale
@tr
scientific article published on July 2009
@en
vedecký článok
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vetenskaplig artikel
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videnskabelig artikel
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vědecký článek
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name
Challenges of patient-reported ...... are—a state of the art review.
@en
Challenges of patient-reported ...... are—a state of the art review.
@nl
type
label
Challenges of patient-reported ...... are—a state of the art review.
@en
Challenges of patient-reported ...... are—a state of the art review.
@nl
prefLabel
Challenges of patient-reported ...... are—a state of the art review.
@en
Challenges of patient-reported ...... are—a state of the art review.
@nl
P2093
P1433
P1476
Challenges of patient-reported ...... are—a state of the art review.
@en
P2093
Denise Globe
Joan Wasserman
Sylvia von Mackensen
P304
P356
10.1111/J.1524-4733.2009.00523.X
P577
2009-07-01T00:00:00Z