about
sameAs
Health-related quality of life questionnaires in individuals with haemophilia: a systematic review of their measurement properties.Exploring disability from the perspective of adults living with HIV/AIDS: development of a conceptual frameworkOral oseltamivir treatment of influenza in children.Validity, reliability, and responsiveness of a new measure of health-related quality of life in children with immune thrombocytopenic purpura: the Kids' ITP Tools.Relationships among bleeding severity, health-related quality of life, and platelet count in children with immune thrombocytopenic purpura.Measuring disease-specific quality of life in rare populations: a practical approach to cross-cultural translationHealth-related quality of life outcomes for patients with immune thrombocytopenic purpura.Pilot study of the effect of romiplostim on child health-related quality of life (HRQoL) and parental burden in immune thrombocytopenia (ITP).Quality of life in childhood immune thrombocytopenia: international validation of the kids' ITP tools.Quality of life in immune thrombocytopenia following treatment.Evaluation of health related quality of life in children with immune thrombocytopenia with the PedsQL™ 4.0 Generic Core Scales: a study on behalf of the pays de Loire pediatric hematology network.How do existing HIV-specific instruments measure up? Evaluating the ability of instruments to describe disability experienced by adults living with HIV.What do we really know about the transition to adult-centered health care? A focus on cerebral palsy and spina bifida.Assessing children's interpretations of the Aboriginal Children's Health and Well-Being Measure (ACHWM).Generic and disease-specific quality of life among youth and young men with Hemophilia in Canada.Validity of the Aboriginal children's health and well-being measure: Aaniish Naa Gegii?Adherence to treatment regimen and bleeding rates in a prospective cohort of youth and young adults on low-dose daily prophylaxis for severe hemophilia A.Evaluating physical function in an adolescent bone tumor population.Cross-cultural adaptation of the CHO-KLAT for boys with hemophilia in rural and urban China.Advancing rehabilitation research: an interactionist perspective to guide question and design.The transition to adulthood for children with cerebral palsy: what do we know about their health care needs?Construct validation of the Health Utilities Index and the Child Health Questionnaire in children undergoing cancer chemotherapy.Putting episodic disability into context: a qualitative study exploring factors that influence disability experienced by adults living with HIV/AIDS.Measuring patient-reported outcomes in haemophilia clinical research.Challenges of patient-reported outcome assessment in hemophilia care—a state of the art review.Reasons for hospital admissions among youth and young adults with cerebral palsy.Process and experience of cross-cultural adaptation of a quality of life measure (CHO-KLAT) for boys with haemophilia in Brazil.Relevance of the Aboriginal Children's Health and Well-being Measure Beyond Wiikwemkoong.A screening mechanism to recognize and support at-risk Aboriginal children.Reliability of the Aboriginal Children's Health and Well-Being Measure (ACHWM).Complexities during transitions to adulthood for youth with disabilities: person-environment interactions.Validation and reliability of a disease-specific quality of life measure (the TranQol) in adults and children with thalassaemia major.Updating the Canadian hemophilia outcomes-kids life assessment tool (CHO-KLAT Version2.0).Importance of literacy for self-reported health-related quality of life: a study of boys with haemophilia in Brazil.The burden of waiting for hip and knee replacements in Ontario. Ontario Hip and Knee Replacement Project Team.Validity of the Portuguese CHO-KLAT in Brazil.What does "active disease" mean? patient and parent perceptions of disease activity in the systemic arthritis form of juvenile idiopathic arthritis (SO-JIA).Developing a disease activity tool for systemic-onset juvenile idiopathic arthritis by international consensus using the Delphi approach.Comparison of oral versus normal and high-dose rectal acetaminophen in the treatment of febrile children.Rasch analysis of the Western Ontario McMaster (WOMAC) Osteoarthritis Index: results from community and arthroplasty samples.
P50
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P50
description
professor of rural and northern health
@en
wetenschapper
@nl
name
Nancy L Young
@nl
Nancy L Young
@sl
Nancy L. Young
@en
Nancy L. Young
@es
type
label
Nancy L Young
@nl
Nancy L Young
@sl
Nancy L. Young
@en
Nancy L. Young
@es
altLabel
Nancy Young
@en
prefLabel
Nancy L Young
@nl
Nancy L Young
@sl
Nancy L. Young
@en
Nancy L. Young
@es
P1053
G-3934-2011
P106
P1153
56426762600
P21
P31
P3829
P496
0000-0002-1739-3299