Development of the US English version of the phenylketonuria - quality of life (PKU-QOL) questionnaire

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Development of the US English version of the phenylketonuria - quality of life (PKU-QOL) questionnaire

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article científic

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bilimsel makale

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scientific article published on 09 March 2017

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vedecký článok

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vetenskaplig artikel

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videnskabelig artikel

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vědecký článek

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Development of the US English ...... f life (PKU-QOL) questionnaire

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Development of the US English version of the phenylketonuria - quality of life

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Development of the US English ...... f life (PKU-QOL) questionnaire

@en

Development of the US English version of the phenylketonuria - quality of life

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Development of the US English ...... f life (PKU-QOL) questionnaire

@en

Development of the US English version of the phenylketonuria - quality of life

@nl

P1476

Development of the US English ...... f life (PKU-QOL) questionnaire

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P2093

Amy Cunningham

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Catherine Acquadro

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Elaina Jurecki

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Grégory Gagol

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Vanessa Birardi

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P2860

Living with phenylketonuria: perspectives of patients and their families

Multinational trials-recommendations on the translations required, approaches to using the same language in different countries, and the approaches to support pooling the data: the ISPOR Patient-Reported Outcomes Translation and Linguistic Validatio

Suboptimal outcomes in patients with PKU treated early with diet alone: revisiting the evidence.

A structural hypothesis for BH4 responsiveness in patients with mild forms of hyperphenylalaninaemia and phenylketonuria.

Current situation and prospects of newborn screening and treatment for Phenylketonuria in China - compared with the current situation in the United States, UK and Japan.

Quality of Life (QoL) assessment in a cohort of patients with phenylketonuria.

Up to date knowledge on different treatment strategies for phenylketonuria.

Development and psychometric validation of measures to assess the impact of phenylketonuria and its dietary treatment on patients' and parents' quality of life: the phenylketonuria - quality of life (PKU-QOL) questionnaires.

Phenylketonuria screening and management in southeastern Europe - survey results from 11 countries.

Assessment of the impact of phenylketonuria and its treatment on quality of life of patients and parents from seven European countries.

P2888

s12955-017-0620-1

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scholarly article

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10.1186/S12955-017-0620-1

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P433

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P478

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2017-03-09T00:00:00Z

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P6179

1084251381

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P698

28274259

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P921

quality of life

phenylketonuria

questionnaire

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5343404

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