Feedback of individual genetic results to research participants: in favor of a qualified disclosure policy. - Wikidata - awgldk - TriplyDB

Feedback of individual genetic results to research participants: in favor of a qualified disclosure policy.

Feedback of individual genetic results to research participants: in favor of a qualified disclosure policy.

http://www.wikidata.org/entity/Q44166679

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Governing the research-care divide in clinical biobanking: Dutch perspectives Reflecting on earlier experiences with unsolicited findings: points to consider for next-generation sequencing and informed consent in diagnostics Public preferences for the return of research results in genetic research: a conjoint analysis When Children Become Adults: Should Biobanks Re-Contact?Dynamics and ethics of comprehensive preimplantation genetic testing: a review of the challenges Feedback of Individual Genetic Results to Research Participants: Is It Feasible in Europe?Consenting for current genetic research: is Canadian practice adequate?Ethical and legal implications of whole genome and whole exome sequencing in African populations.Following the giant's paces-governance issues and bioethical reflections in China.Data sharing in stem cell translational science: policy statement by the International Stem Cell Forum Ethics Working Party.Self-guided management of exome and whole-genome sequencing results: changing the results return model.Amnestic MCI Patients' Perspectives toward Disclosure of Amyloid PET Results in a Research Context.Genome sequencing and carrier testing: decisions on categorization and whether to disclose results of carrier testing.A framework for analyzing the ethics of disclosing genetic research findings.Experiences and attitudes of genome investigators regarding return of individual genetic test results.Inclusion of residual tissue in biobanks: opt-in or opt-out?Informed consent for exome sequencing in diagnostics: exploring first experiences and views of professionals and patients.Use of next generation sequencing technologies in research and beyond: are participants with mental health disorders fully protected?You never call, you never write: why return of 'omic' results to research participants is both a good idea and a moral imperative.Paediatric research and the communication of not-so incidental findings Personalized assent for pediatric biobanks.Funding considerations for the disclosure of genetic incidental findings in biobank research.Genetics specialists' perspectives on disclosure of genomic incidental findings in the clinical setting.Timing and context: important considerations in the return of genetic results to research participants.Preferences for genetic testing for colorectal cancer within a population-based screening program: a discrete choice experiment Beneficence, clinical urgency, and the return of individual research results to relatives Paediatric biobanking: Dutch experts reflecting on appropriate legal standards for practice.Parental attitudes, values, and beliefs toward the return of results from exome sequencing in children.Disclosure of individual pharmacogenomic results in research projects: when and what kind of information to return to research participants.Disclosure of incidental findings in cancer genomic research: investigators' perceptions on obligations and barriers.Whole-exome sequencing in pediatrics: parents' considerations toward return of unsolicited findings for their child.Unsolicited findings of next-generation sequencing for tumor analysis within a Dutch consortium: clinical daily practice reconsidered.A clinical utility study of exome sequencing versus conventional genetic testing in pediatric neurology Ethical considerations of neuro-oncology trial design in the era of precision medicine.Participants' Role Expectations in Genetics Research and Re-consent: Revising the Theory and Methods of Mental Models Research Relating to Roles.A tiered-layered-staged model for informed consent in personal genome testing.Evaluating a counselling strategy for diagnostic WES in paediatric neurology: an exploration of parents' information and communication needs.A thick opt-out is often sufficient.Disclosure and management of research findings in stem cell research and banking: policy statement.Amnestic MCI patients' experiences after disclosure of their amyloid PET result in a research context.

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P2860

Feedback of individual genetic results to research participants: in favor of a qualified disclosure policy.

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Johannes J M Van Delden

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N Charlotte Onland-Moret

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P2860

Clinical assessment incorporating a personal genome

Ethical implications of the use of whole genome methods in medical research

Disclosure of individual genetic data to research participants: the debate reconsidered.

An epidemiological perspective on the future of direct-to-consumer personal genome testing.

Letting the gene out of the bottle: a comment on returning individual research results to participants.

Ethical and practical guidelines for reporting genetic research results to study participants: updated guidelines from a National Heart, Lung, and Blood Institute working group

Offering individual genetic research results: context matters.

Female reproductive ageing: current knowledge and future trends.

Managing incidental findings in human subjects research: analysis and recommendations.

Understanding incidental findings in the context of genetics and genomics.

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10.1002/HUMU.21518

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Annelien Bredenoord

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