Parental attitudes, values, and beliefs toward the return of results from exome sequencing in children.
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Incidental Findings with Genomic Testing: Implications for Genetic Counseling PracticeResearch participants' attitudes towards the confidentiality of genomic sequence informationPathogenic variants for Mendelian and complex traits in exomes of 6,517 European and African Americans: implications for the return of incidental resultsStakeholder views on secondary findings in whole-genome and whole-exome sequencing: a systematic review of quantitative and qualitative studies.Return of Results from Genomic Sequencing: A Policy Discussion of Secondary Findings for Cancer Predisposition.An approach to pediatric exome and genome sequencing.Parent and public interest in whole-genome sequencingExpectation versus Reality: The Impact of Utility on Emotional Outcomes after Returning Individualized Genetic Research Results in Pediatric Rare Disease Research, a Qualitative Interview Study.Genetic testing of children for adult-onset conditions: opinions of the British adult population and implications for clinical practice.Research participants in NGS studies want to know about incidental findingsIllustrative case studies in the return of exome and genome sequencing results.Patients' views on incidental findings from clinical exome sequencing.How can psychological science inform research about genetic counseling for clinical genomic sequencing?Attitudes of nearly 7000 health professionals, genomic researchers and publics toward the return of incidental results from sequencing research.When Participants in Genomic Research Grow Up: Contact and Consent at the Age of MajorityPatient hopes for diagnostic genomic sequencing: roles of uncertainty and social status.Research participant interest in primary, secondary, and incidental genomic findings.Understanding the Psychosocial Effects of WES Test Results on Parents of Children with Rare Diseases.Whole exome or genome sequencing: nurses need to prepare families for the possibilities.Defining and managing incidental findings in genetic and genomic practice."Set in Stone" or "Ray of Hope": Parents' Beliefs About Cause and Prognosis After Genomic Testing of Children Diagnosed with ASD.Whole-exome sequencing in pediatrics: parents' considerations toward return of unsolicited findings for their child.Choices for return of primary and secondary genomic research results of 790 members of families with Mendelian disease.Overcoming challenges to meaningful informed consent for whole genome sequencing in pediatric cancer research.Prenatal whole-exome sequencing: parental attitudes.Evaluating a counselling strategy for diagnostic WES in paediatric neurology: an exploration of parents' information and communication needs.Returning pharmacogenetic secondary findings from genome sequencing: let's not put the cart before the horse.Parents' Perspectives on Supporting Their Decision Making in Genome-Wide Sequencing.Prior opioid exposure influences parents' sharing of their children's CYP2D6 research results.Impact of a Patient-Facing Enhanced Genomic Results Report to Improve Understanding, Engagement, and Communication.Diagnostic exome sequencing in children: A survey of parental understanding, experience and psychological impact.Pediatric Issues in Return of Results and Incidental Findings: Weighing Autonomy and Best Interests.Not the End of the Odyssey: Parental Perceptions of Whole Exome Sequencing (WES) in Pediatric Undiagnosed Disorders.The communication of secondary variants: interviews with parents whose children have undergone array-CGH testing.Public's Views toward Return of Secondary Results in Genomic Sequencing: It's (Almost) All about the Choice.Views of primary care providers regarding the return of genome sequencing incidental findings.Parental Perception of Self-Empowerment in Pediatric Pharmacogenetic Testing: The Reactions of Parents to the Communication of Actual and Hypothetical CYP2D6 Test Results.Pediatric Whole Exome Sequencing: an Assessment of Parents' Perceived and Actual Understanding.Prenatal whole exome sequencing: the views of clinicians, scientists, genetic counsellors and patient representatives.Patient perspectives on whole-genome sequencing for undiagnosed diseases.
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Parental attitudes, values, and beliefs toward the return of results from exome sequencing in children.
description
article científic
@ca
article scientifique
@fr
articolo scientifico
@it
artigo científico
@pt
bilimsel makale
@tr
scientific article published on 20 September 2013
@en
vedecký článok
@sk
vetenskaplig artikel
@sv
videnskabelig artikel
@da
vědecký článek
@cs
name
Parental attitudes, values, an ...... exome sequencing in children.
@en
Parental attitudes, values, an ...... exome sequencing in children.
@nl
type
label
Parental attitudes, values, an ...... exome sequencing in children.
@en
Parental attitudes, values, an ...... exome sequencing in children.
@nl
prefLabel
Parental attitudes, values, an ...... exome sequencing in children.
@en
Parental attitudes, values, an ...... exome sequencing in children.
@nl
P2093
P2860
P356
P1433
P1476
Parental attitudes, values, an ...... exome sequencing in children.
@en
P2093
B B Biesecker
L G Biesecker
P2860
P304
P356
10.1111/CGE.12254
P577
2013-09-20T00:00:00Z