Quality of life in children and families with bleeding disorders.
about
Disease-specific quality-of-life measurement tools for haemophilia patients.Quality of life and sports activities in patients with haemophilia.Health-Related Quality of Life in Children and Adolescents with Hereditary Bleeding Disorders and in Children and Adolescents with Stroke: Cross-Sectional Comparison to Siblings and Peers.Haemophilia A: meeting the needs of individual patients.Psychosocial aspects of haemophilia: a systematic review of methodologies and findings.An overview of current trends and gaps in patient-reported outcome measures used in haemophilia.Quantifying adherence to treatment and its relationship to quality of life in a well-characterized haemophilia population.The impact of a haemophilia education intervention on the knowledge and health related quality of life of parents of Indian children with haemophilia.The demographics, treatment characteristics and quality of life of adult people with haemophilia in China - results from the HERO study.Adherence to prophylaxis and quality of life in children and adolescents with severe haemophilia A.Measuring health state preferences for hemophilia: development of a disease-specific utility instrument.Health-related quality of life in children with high-functioning autism.Impact of personality and depression on quality of life in patients with severe haemophilia in Korea.Parents' perception of quality of life in their sons with haemophilia.Optimization of home treatment in haemophilia: effects of transmural support by a haemophilia nurse on adherence and quality of life.Physical fitness, functional ability and quality of life in children with severe haemophilia: a pilot study.Effectiveness of an educational intervention of physiotherapy in parents of children with haemophilia.The relative burden of haemophilia A and the impact of target joint development on health-related quality of life: results from the ADVATE Post-Authorization Safety Surveillance (PASS) study.Parents of children with haemophilia--a transforming experience.Development and testing of an instrument to assess the Quality of Life of Children with Haemophilia in Europe (Haemo-QoL).Quality of Life in Children and Adolescents With Rare Bleeding Disorders in Southern Iran.Bone Density Status in Bleeding Disorders: Where Are We and What Needs to Be Done?Health-related quality of life of the parents of children hospitalized due to acute rotavirus infection: a cross-sectional study in Latvia.
P2860
Q35915643-53B08B11-B1B0-4A28-8CD4-E6636CA80BBEQ36904933-CE160B53-D392-416D-9720-E519FF2387B9Q36945725-9A931A3C-0DB1-488D-9D8F-72429A681912Q37008132-17E64A92-6549-44CF-A80C-0FB29F97CF1EQ37953473-9D52F922-301F-4F8A-A926-3042E9FE029BQ38223329-74D4E648-37DA-421C-8AF4-B455AC41D1BAQ40172564-6ABF17B0-E29F-49B9-BEBD-0FE5CD92D68BQ40576526-F16AB40E-494F-47BC-8A63-79771CC36866Q40593079-6CEF06E9-2E5F-4E6E-AD4E-ABB36269A7E8Q41483187-C51FACD2-492D-443C-9061-39866BA1B229Q44716456-AC8A2F43-BA3F-4C63-B1EE-7D54C81C2BE0Q45302406-00C4071D-9C75-43DA-A806-79CD83F106D1Q45854887-5C3FC406-3ECB-4BCE-A95D-5C60D63BB023Q45857719-A2FE671B-DE9A-4584-BC0D-B615535B6759Q45861239-9FEE4DC1-5E83-4C75-8008-A6D9D9D597FCQ45861851-1BC91E56-F3B3-4032-BAC0-8201975821ACQ45864446-360A0552-5EC6-4509-B011-0510E5787F1EQ45867418-9CD444DA-5ED4-40B9-9B17-B5F7751ED2CBQ45871258-B71A5521-4F9B-4C4D-BCA5-65FA3105C7E8Q45873263-53FE22FE-57D0-4125-A619-53188C4221B2Q45883458-62F79A70-802A-41B1-8186-3B84C6F52834Q47162354-159913F2-CCFE-4065-8165-11EC8A59BA1FQ54255306-1716980A-C9B0-4A6D-BF72-538F10E32327
P2860
Quality of life in children and families with bleeding disorders.
description
2003 nî lūn-bûn
@nan
2003年の論文
@ja
2003年学术文章
@wuu
2003年学术文章
@zh
2003年学术文章
@zh-cn
2003年学术文章
@zh-hans
2003年学术文章
@zh-my
2003年学术文章
@zh-sg
2003年學術文章
@yue
2003年學術文章
@zh-hant
name
Quality of life in children and families with bleeding disorders.
@en
Quality of life in children and families with bleeding disorders.
@nl
type
label
Quality of life in children and families with bleeding disorders.
@en
Quality of life in children and families with bleeding disorders.
@nl
prefLabel
Quality of life in children and families with bleeding disorders.
@en
Quality of life in children and families with bleeding disorders.
@nl
P1476
Quality of life in children and families with bleeding disorders.
@en
P2093
Haemo-QoL Group
Sylvia Von Mackensen
P356
10.1097/00043426-200312001-00015
P478
25 Suppl 1
P577
2003-12-01T00:00:00Z