Development and testing of an instrument to assess the Quality of Life of Children with Haemophilia in Europe (Haemo-QoL).
about
Psychological interventions for people with hemophiliaEstimates of utility weights in hemophilia: implications for cost-utility analysis of clotting factor prophylaxisHealth-related quality of life questionnaires in individuals with haemophilia: a systematic review of their measurement properties.The effect of an exercise intervention on aerobic fitness, strength and quality of life in children with haemophilia (ACTRN012605000224628).Measuring disease-specific quality of life in rare populations: a practical approach to cross-cultural translationPsychometric properties of the Greek Haem-A-QoL for measuring quality of life in Greek haemophilia patients.Patient preference for needleless factor VIII reconstitution device: the Italian experienceRandomized comparison of prophylaxis and on-demand regimens with FEIBA NF in the treatment of haemophilia A and B with inhibitors.Content comparison of haemophilia specific patient-rated outcome measures with the international classification of functioning, disability and health (ICF, ICF-CY).Quality of life assessment in haemophilia.Disease-specific quality-of-life measurement tools for haemophilia patients.Optimizing factor prophylaxis for the haemophilia population: where do we stand?Optimal haemophilia care versus the reality.Paediatric quality of life instruments: a review of the impact of the conceptual framework on outcomes.Quality of life assessment in clinical practice in haemophilia treatment.Issues in pediatric haemophilia careQuality of life and sports activities in patients with haemophilia.Psychosocial aspects of haemophilia: a systematic review of methodologies and findings.Assessment of outcomes.Outcome measures in haemophilia: a systematic review.An overview of current trends and gaps in patient-reported outcome measures used in haemophilia.Cross-cultural adaptation and linguistic validation of age-group-specific haemophilia patient-reported outcome (PRO) instruments for patients and parents.Assessments of outcome in haemophilia - what is the added value of QoL tools?Health-related quality of life assessment in haemophilia patients on prophylaxis therapy: a systematic review of results from prospective clinical trials.Study of physical function in adolescents with haemophilia: The SO-FIT study.Recognizing the need for personalization of haemophilia patient-reported outcomes in the prophylaxis era.Psychosocial care for children with haemophilia and their parents in the Netherlands.Importance of literacy for self-reported health-related quality of life: a study of boys with haemophilia in Brazil.Health-related quality of life in Egyptian children and adolescents with hemophilia A.Psychometric field testing of the HemoLatin-QoL questionnaire.The effect of yoga on the quality of life in the children and adolescents with haemophilia.Adherence to prophylaxis and quality of life in children and adolescents with severe haemophilia A.Reliability of patient-reported outcome instruments in US adults with hemophilia: the Pain, Functional Impairment and Quality of life (P-FiQ) study.Assessment of the impact of treatment on quality of life of patients with haemophilia A at different ages: insights from two clinical trials on turoctocog alfa.Coagulation deficiencies: a look to the future.Health-related quality of life in haemophilia patients with inhibitors and their caregivers.Insight into health-related quality of life of young children with haemophilia B treated with long-acting nonacog beta pegol recombinant factor IX.Comparing two measures of quality of life for children with haemophilia: the CHO-KLAT and the Haemo-QoL.Impact of personality and depression on quality of life in patients with severe haemophilia in Korea.Development and preliminary testing of a Paediatric Version of the Haemophilia Activities List (pedhal).
P2860
Q24197868-130E1210-1003-4C26-B2D7-676089E98324Q26865814-12DB7B8C-D4B3-4CDD-A1D1-39AA123029D3Q30234720-A223BF87-5EA1-47FA-94CF-4FB58565D433Q33245039-A74294E8-949F-44B5-83EA-BBC1B693F802Q33386766-2E15D76C-551A-4967-B16C-FAED6DC05665Q33634745-8E7CBE6C-1A89-4EB0-957B-15D1FB66D3D4Q34041899-834F3C7E-E0A4-4D8C-B706-5522E524331DQ34436796-177DE4E1-EF5C-4EE1-97B6-C374729F718DQ34498533-C291698C-A508-44B7-B239-942FC3C7E20EQ35677000-9393E779-C8B8-4482-831F-A4F52EB55227Q35915643-87CFCD36-99DA-4BB8-AE54-D8AE6C90BA30Q35915686-FBC32812-C5EB-48CB-A01C-D32C58205E67Q36399847-2FC5ACF6-00C4-403D-AD3F-4AFAFD811918Q36423296-4C06ED8F-CB33-43C7-8ADA-F27F48A9FCFDQ36473028-B3F55A52-7BA4-4B0E-858A-73D2C09E3382Q36835166-CA3CD285-BC6C-43D4-A707-44B06F7F2D10Q36904933-7ACEB639-E9E4-490F-986C-01E40CF17449Q37953473-F432D2F5-4ECF-4CA8-9240-BBF4D66515B9Q38206860-360D1680-677F-45DE-A6E8-19E1619C9168Q38222571-BE3A01CB-15C1-43C5-B570-6DC08B24D9D6Q38223329-20A2994D-90C0-4E6D-A8CF-F08ABC15A60CQ38461005-CAA34033-8147-4920-ADA2-0A2977AF6099Q38511447-4BDB14B7-5BA6-4A69-92A2-C10FA0A072BEQ38590269-EA72E040-DA31-4C42-9FAC-97192F4A1B16Q38625593-3EFF3AEF-2E3D-4E41-9E42-FA1C64BFA061Q38942895-BAFCAEC1-AB97-4314-854F-53A5C97B1208Q39189320-754DF3D9-733C-46BF-B392-C7C6F636D7A7Q39399433-A01D6FD8-2ADF-4726-A747-0C6790639F96Q39510884-D52C6FD1-39F0-44CE-BC79-257AC6E91F3AQ39535630-A8F6A99D-4FA9-4E30-9CD0-9FF86CA14FB6Q40905925-B49D44C9-D558-4FD6-A0E3-73A0E6D04105Q41483187-A733C81A-92C4-44C5-9C54-A9134CCEE058Q42364463-AAE3D346-5472-4805-83E4-5511B7A73B0BQ43088590-0EC8B506-BD46-467C-80F5-27F04644EC57Q43517013-C7C6E3B5-C469-4D8A-BE97-02D08BEDB40FQ44648378-53CB6A4C-0EB6-425E-8625-B092D8E8AE05Q44871479-290577AA-A443-4617-B2E3-263D8340DE36Q45186524-DC3CC957-0B5E-459F-AF9C-A9E9D61B18E6Q45854887-1DFE5250-4BDF-4979-8574-4A0E1B9C29BBQ45855013-C36664DE-299E-4EFB-81F0-EF7435C60973
P2860
Development and testing of an instrument to assess the Quality of Life of Children with Haemophilia in Europe (Haemo-QoL).
description
2004 nî lūn-bûn
@nan
2004年の論文
@ja
2004年学术文章
@wuu
2004年学术文章
@zh
2004年学术文章
@zh-cn
2004年学术文章
@zh-hans
2004年学术文章
@zh-my
2004年学术文章
@zh-sg
2004年學術文章
@yue
2004年學術文章
@zh-hant
name
Development and testing of an ...... ophilia in Europe (Haemo-QoL).
@en
Development and testing of an ...... ren with Haemophilia in Europe
@nl
type
label
Development and testing of an ...... ophilia in Europe (Haemo-QoL).
@en
Development and testing of an ...... ren with Haemophilia in Europe
@nl
prefLabel
Development and testing of an ...... ophilia in Europe (Haemo-QoL).
@en
Development and testing of an ...... ren with Haemophilia in Europe
@nl
P2093
P2860
P1433
P1476
Development and testing of an ...... ophilia in Europe (Haemo-QoL).
@en
P2093
Haemo-QoL Group
M Bullinger
S von Mackensen
P2860
P356
10.1111/J.1355-0691.2004.00875.X
P478
10 Suppl 1
P577
2004-03-01T00:00:00Z