Subjects matter: a survey of public opinions about a large genetic cohort study. - Wikidata - awgldk - TriplyDB

Subjects matter: a survey of public opinions about a large genetic cohort study.

Subjects matter: a survey of public opinions about a large genetic cohort study.

http://www.wikidata.org/entity/Q48315283

about

Evolving approaches to the ethical management of genomic data Communicating results in post-Belmont era biomonitoring studies: lessons from genetics and neuroimaging research Return of individual research results and incidental findings: facing the challenges of translational science The MICHR Genomic DNA BioLibrary: An Empirical Study of the Ethics of Biorepository Development Public preferences for the return of research results in genetic research: a conjoint analysis Motivations, concerns and preferences of personal genome sequencing research participants: Baseline findings from the HealthSeq project Open access data sharing in genomic research Public preferences regarding informed consent models for participation in population-based genomic research The Electronic Medical Records and Genomics (eMERGE) Network: past, present, and future Genomic research and wide data sharing: views of prospective participants Biobanking in pediatrics: the human nonsubjects approach Incidental genetic findings in randomized clinical trials: recommendations from the Genomics and Randomized Trials Network (GARNET).Public preferences regarding the return of individual genetic research results: findings from a qualitative focus group study Parent perspectives on privacy and governance for a pediatric repository of non-biological, research data.An effective multisource informed consent procedure for research and clinical practice: an observational study of patient understanding and awareness of their roles as research stakeholders in a cancer biobank Genetic research in the blood bank: acceptability to Northern California donors Personal genome research : what should the participant be told?Models of consent to return of incidental findings in genomic research Prospective biorepository participants' perspectives on access to research results.Only connect: personal genomics and the future of American medicine.Experiences and attitudes of genome investigators regarding return of individual genetic test results.Biobank participants' preferences for disclosure of genetic research results: perspectives from the OurGenes, OurHealth, OurCommunity project Hypothetical and factual willingness to participate in biobank research Molecular genetic testing and the future of clinical genomics.Finding Fault? Exploring Legal Duties to Return Incidental Findings in Genomic Research.Lessons to be learned from 25 years of research investigating psychosocial interventions for cancer patients Research ethics. Research practice and participant preferences: the growing gulf.Design, methods, and participant characteristics of the Impact of Personal Genomics (PGen) Study, a prospective cohort study of direct-to-consumer personal genomic testing customers.Testing an online, dynamic consent portal for large population biobank research.Attitudes toward molecular testing for personalized cancer therapy.Ethical and practical guidelines for reporting genetic research results to study participants: updated guidelines from a National Heart, Lung, and Blood Institute working group Confronting real time ethical, legal, and social issues in the Electronic Medical Records and Genomics (eMERGE) Consortium.Offering individual genetic research results: context matters.Return of individual genetic results in a high-risk sample: enthusiasm and positive behavioral change.Reasons for participating and genetic information needs among racially and ethnically diverse biobank participants: a focus group study Biobank Recruitment: Motivations for Nonparticipation Public perspectives on returning genetics and genomics research results.No small matter: qualitatively distinct challenges of pediatric genomic studies.Oncology patients overwhelmingly support tissue banking.Researchers' views on informed consent for return of secondary results in genomic research.

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P2860

Subjects matter: a survey of public opinions about a large genetic cohort study.

http://www.wikidata.org/entity/Q48315283

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2008 nî lūn-bûn

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2008年の論文

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2008年学术文章

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2008年学术文章

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2008年學術文章

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Subjects matter: a survey of public opinions about a large genetic cohort study.

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Subjects matter: a survey of public opinions about a large genetic cohort study.

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Juli Murphy

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P2860

High rate of consent to bank biologic samples for future research: the Eastern Cooperative Oncology Group experience.

UK Biobank: bank on it.

Genes, environment and the value of prospective cohort studies.

Prospective preference assessment: a method to enhance the ethics and efficiency of randomized controlled trials.

A study of public opinion on the use of tissue samples from living subjects for clinical research

Attitudes of urban American Indians and Alaska Natives regarding participation in research

The return of research results to participants: pilot questionnaire of adolescents and parents of children with cancer.

Attitudes of research ethics board chairs towards disclosure of research results to participants: results of a national survey

Development of a large-scale de-identified DNA biobank to enable personalized medicine.

The debate over research on stored biological samples: what do sources think?

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