The disclosure of incidental genomic findings: an "ethically important moment" in pediatric research and practice.
about
Clinical genome sequencing and population preferences for information about 'incidental' findings-From medically actionable genes (MAGs) to patient actionable genes (PAGs)Models of consent to return of incidental findings in genomic researchReturning incidental findings from genetic research to children: views of parents of children affected by rare diseases'Information is information': a public perspective on incidental findings in clinical and research genome-based testingSingle-nucleotide polymorphism arrays and unexpected consanguinity: considerations for clinicians when returning results to families.Preferences for the provision of whole genome sequencing services among young adults.Utilization of genetic testing among children with developmental disabilities in the United States.A Systematic Review of the Management of Incidental Findings in Genomic Research.Defining and managing incidental findings in genetic and genomic practice.Whole-exome sequencing in pediatrics: parents' considerations toward return of unsolicited findings for their child.The importance of patient engagement.The communication of secondary variants: interviews with parents whose children have undergone array-CGH testing.Genomic sequencing identifies secondary findings in a cohort of parent study participants
P2860
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P2860
The disclosure of incidental genomic findings: an "ethically important moment" in pediatric research and practice.
description
article científic
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article scientifique
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articolo scientifico
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artigo científico
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bilimsel makale
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scientific article published on 10 April 2013
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vedecký článok
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vetenskaplig artikel
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videnskabelig artikel
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vědecký článek
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name
The disclosure of incidental g ...... diatric research and practice.
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The disclosure of incidental g ...... diatric research and practice.
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type
label
The disclosure of incidental g ...... diatric research and practice.
@en
The disclosure of incidental g ...... diatric research and practice.
@nl
prefLabel
The disclosure of incidental g ...... diatric research and practice.
@en
The disclosure of incidental g ...... diatric research and practice.
@nl
P2093
P2860
P50
P1476
The disclosure of incidental g ...... diatric research and practice.
@en
P2093
Alyson Hanish
Christian M Simon
Martha Driessnack
Mohammed Alasagheirin
Nancy Downing
P2860
P2888
P304
P356
10.1007/S12687-013-0145-1
P577
2013-04-10T00:00:00Z