about
The Scleroderma Patient-centered Intervention Network (SPIN) Cohort: protocol for a cohort multiple randomised controlled trial (cmRCT) design to support trials of psychosocial and rehabilitation interventions in a rare disease context.An assessment of the measurement equivalence of English and French versions of the Center for Epidemiologic Studies Depression (CES-D) Scale in systemic sclerosis.Cross-language measurement equivalence of the Center for Epidemiologic Studies Depression (CES-D) scale in systemic sclerosis: a comparison of Canadian and Dutch patients.The comparability of English, French and Dutch scores on the Functional Assessment of Chronic Illness Therapy-Fatigue (FACIT-F): an assessment of differential item functioning in patients with systemic sclerosis.Spirituality and Negative Emotions in Individuals With Coronary Heart Disease.Exploring Sources of Emotional Distress among People Living with Scleroderma: A Focus Group StudyPsychological health and well-being in systemic sclerosis: State of the science and consensus research agenda.Effectiveness of Nonpharmacologic Interventions in Systemic Sclerosis: A Systematic Review.Psychosocial Aspects of Scleroderma.Performance of the Patient-Reported Outcomes Measurement Information System-29 in scleroderma: a Scleroderma Patient-centered Intervention Network Cohort Study.Reasons for Not Participating in Scleroderma Patient Support Groups: A Cross-sectional Study.Comparison of Self-Efficacy for Managing Chronic Disease between patients with systemic sclerosis and other chronic conditions: a systematic review.Cognitive-behavioural therapy targeting fear of progression in an interdisciplinary care program: a case study in systemic sclerosis.The association of sociodemographic and objectively-assessed disease variables with fatigue in systemic sclerosis: an analysis of 785 Canadian Scleroderma Research Group Registry patients.Validity of the Fear of Progression Questionnaire-Short Form in patients with systemic sclerosis.Understanding coping strategies among people living with scleroderma: a focus group study.Assessment of English-French differential item functioning of the Satisfaction with Appearance Scale (SWAP) in systemic sclerosis.Exercise habits and factors associated with exercise in systemic sclerosis: a Scleroderma Patient-centered Intervention Network (SPIN) cohort study.Validation of the Body Concealment Scale for Scleroderma (BCSS): Replication in the Scleroderma Patient-centered Intervention Network (SPIN) Cohort.Examination of the association of sex and race/ethnicity with appearance concerns: a Scleroderma Patient-centered Intervention Network (SPIN) Cohort study.Development and Validation of the Body Concealment Scale for Scleroderma.Can the Cancer-related Fatigue Case-definition Criteria Be Applied to Chronic Medical Illness? A Comparison between Breast Cancer and Systemic Sclerosis.Validation of the Self-Efficacy for Managing Chronic Disease Scale: A Scleroderma Patient-Centered Intervention Network Cohort Study.Using Optimal Test Assembly Methods for Shortening Patient-Reported Outcome Measures: Development and Validation of the Cochin Hand Function Scale-6: A Scleroderma Patient-Centered Intervention Network Cohort Study.Validation of the Social Appearance Anxiety Scale in Patients with Systemic Sclerosis: A Scleroderma Patient-centered Intervention Network Cohort Study.Reasons for attending support groups and organizational preferences: the European scleroderma support group members survey.Addressing overestimation of the prevalence of depression based on self-report screening questionnaires.Major depression diagnoses among patients with systemic sclerosis: baseline and one-month followup.Three-year trajectories of disability and fatigue in systemic sclerosis: a cohort study.Using Marital Status and Continuous Marital Satisfaction Ratings to Predict Depressive Symptoms in Married and Unmarried Women With Systemic Sclerosis: A Canadian Scleroderma Research Group Study.Structural validation of the Self-Compassion Scale with a German general population sample.Reassessing the clinical utility of the Patient Health Questionnaire (PHQ)-9 for depression screening in prenatal women: a commentary on Sidebottom et al.Disease-related and psychosocial factors associated with depressive symptoms in patients with systemic sclerosis, including fear of progression and appearance self-esteem.Addressing patient health care demands in systemic sclerosis: pre-post assessment of a psycho-educational group programme.Validation of the Brief Fear of Negative Evaluation Scale-II in patients with systemic sclerosis: A Scleroderma Patient-centered Intervention Network Cohort study.Frequency and impact of disease symptoms experienced by patients with systemic sclerosis from five European countries.Factor structure and convergent validity of the Derriford Appearance Scale-24 using standard scoring versus treating 'not applicable' responses as missing data: a Scleroderma Patient-centered Intervention Network (SPIN) cohort study.Protocol for a scoping review to support development of a CONSORT extension for randomised controlled trials using cohorts and routinely collected health dataTrial registration in rheumatology: the next stepPrevalence of posttraumatic stress disorder (PTSD) in women with breast cancer
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P50
description
hulumtuese
@sq
researcher
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wetenschapper
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հետազոտող
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name
Linda Kwakkenbos
@ast
Linda Kwakkenbos
@en
Linda Kwakkenbos
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Linda Kwakkenbos
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type
label
Linda Kwakkenbos
@ast
Linda Kwakkenbos
@en
Linda Kwakkenbos
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Linda Kwakkenbos
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prefLabel
Linda Kwakkenbos
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Linda Kwakkenbos
@en
Linda Kwakkenbos
@es
Linda Kwakkenbos
@nl
P106
P21
P31
P496
0000-0002-1573-4504