Genomic research and wide data sharing: views of prospective participants
about
Evolving approaches to the ethical management of genomic dataIf you build it, they will come: unintended future uses of organised health data collectionsStakeholders' perspectives on biobank-based genomic research: systematic review of the literatureAttitudes of research participants and the general public towards genomic data sharing: a systematic literature reviewFrom patients to partners: participant-centric initiatives in biomedical researchParental perspectives on consent for participation in large-scale, non-biological data repositoriesMotivations, concerns and preferences of personal genome sequencing research participants: Baseline findings from the HealthSeq projectScientists' perspectives on consent in the context of biobanking research.Moving from trust to trustworthiness: Experiences of public engagement in the Scottish Health Informatics ProgrammeConducting a large, multi-site survey about patients' views on broad consent: challenges and solutionsGenomics really gets personal: how exome and whole genome sequencing challenge the ethical framework of human genetics researchSamples and data accessibility in research biobanks: an explorative surveyTrust, Respect, and Reciprocity: Informing Culturally Appropriate Data-Sharing Practice in VietnamDeveloping Ethical Practices for Public Health Research Data Sharing in South Africa: The Views and Experiences From a Diverse Sample of Research StakeholdersStarting the data conversation: informing data services at an academic health sciences librarySharing with More Caring: Coordinating and Improving the Ethical Governance of Data and Biomaterials Obtained from ChildrenBiobanks and electronic medical records: enabling cost-effective researchResearch participants' attitudes towards the confidentiality of genomic sequence informationOpen access data sharing in genomic researchAttitudes regarding privacy of genomic information in personalized cancer therapyGenetic research participation in a young adult community sampleParticipant-Centric Initiatives: Tools to Facilitate Engagement In ResearchInformed Consent in Genome-Scale Research: What Do Prospective Participants Think?Offering aggregate results to participants in genomic research: opportunities and challengesPublic perspectives regarding data-sharing practices in genomics researchThe eMERGE Network: a consortium of biorepositories linked to electronic medical records data for conducting genomic studiesEthical and practical challenges of sharing data from genome-wide association studies: the eMERGE Consortium experienceOpen sharing of genomic data: Who does it and why?Parent perspectives on privacy and governance for a pediatric repository of non-biological, research data.Genomic data in the electronic medical record: perspectives from a biobank community advisory board.A systematic literature review of individuals' perspectives on broad consent and data sharing in the United States.Expanding Access to Large-Scale Genomic Data While Promoting Privacy: A Game Theoretic Approach.Potential bias in the bank: what distinguishes refusers, nonresponders and participants in a clinic-based biobank?Glad you asked: participants' opinions of re-consent for dbGap data submissionDe-identified genomic data sharing: the research participant perspective.Bridging consent: from toll bridges to lift bridges?Research ethics. Research practice and participant preferences: the growing gulf.Cancer patient perceptions on the ethical and legal issues related to biobankingThe translational potential of research on the ethical, legal, and social implications of genomicsExtending the surrogacy analogy: applying the advance directive model to biobanks.
P2860
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P2860
Genomic research and wide data sharing: views of prospective participants
description
2010 nî lūn-bûn
@nan
2010 թուականի Օգոստոսին հրատարակուած գիտական յօդուած
@hyw
2010 թվականի օգոստոսին հրատարակված գիտական հոդված
@hy
2010年の論文
@ja
2010年論文
@yue
2010年論文
@zh-hant
2010年論文
@zh-hk
2010年論文
@zh-mo
2010年論文
@zh-tw
2010年论文
@wuu
name
Genomic research and wide data sharing: views of prospective participants
@ast
Genomic research and wide data sharing: views of prospective participants
@en
Genomic research and wide data sharing: views of prospective participants
@nl
type
label
Genomic research and wide data sharing: views of prospective participants
@ast
Genomic research and wide data sharing: views of prospective participants
@en
Genomic research and wide data sharing: views of prospective participants
@nl
prefLabel
Genomic research and wide data sharing: views of prospective participants
@ast
Genomic research and wide data sharing: views of prospective participants
@en
Genomic research and wide data sharing: views of prospective participants
@nl
P2860
P50
P3181
P1433
P1476
Genomic research and wide data sharing: views of prospective participants
@en
P2093
Eric B Larson
Julie M Bares
P2860
P2888
P304
P3181
P356
10.1097/GIM.0B013E3181E38F9E
P407
P577
2010-08-01T00:00:00Z
P6179
1034625577