From single biobanks to international networks: developing e-governance
about
Spanning the genomics era: the vital role of a single institution biorepository for childhood cancer research over a decadeStemBANCC: Governing Access to Material and Data in a Large Stem Cell Research ConsortiumThe tension between data sharing and the protection of privacy in genomics researchBig data, open science and the brain: lessons learned from genomicsAttitudes of research participants and the general public towards genomic data sharing: a systematic literature reviewFrom patients to partners: participant-centric initiatives in biomedical researchSecurely measuring the overlap between private datasets with cryptosetsIntroduction to the article collection 'Translation in healthcare: ethical, legal, and social implications'Samples and data accessibility in research biobanks: an explorative surveyEthical considerations of research policy for personal genome analysis: the approach of the Genome Science Project in JapanA call for global governance of biobanksDynamic consent: a patient interface for twenty-first century research networksData sharing policy design for consortia: challenges for sustainabilityBiobanking: The Melding of Research with Clinical CarePower to the people: a wiki-governance model for biobankseRegistries: governance for electronic maternal and child health registries.Data harmonization and federated analysis of population-based studies: the BioSHaRE project.Big Data in medical research and EU data protection law: challenges to the consent or anonymise approachThe evolution of withdrawal: negotiating research relationships in biobankingChallenges and opportunities for ELSI early career researchers.Implementation of proteomic biomarkers: making it work.Bio-objectifying European bodies: standardisation of biobanks in the Biobanking and Biomolecular Resources Research Infrastructure.Closure of a human tissue biobank: individual, institutional, and field expectations during cycles of promise and disappointmentQuantifying the use of bioresources for promoting their sharing in scientific researchTo share or not to share: that is not the question.Broad consent versus dynamic consent in biobank research: is passive participation an ethical problem?Developing translational research infrastructure and capabilities associated with cancer clinical trials.Legal & ethical compliance when sharing biospecimen.Access Governance for Biobanks: The Case of the BioSHaRE-EU Cohorts.Ethically sustainable governance in the biobanking of eggs and embryos for research.The RUDY study: using digital technologies to enable a research partnership.Ethical considerations in biobanks: how a public health ethics perspective sheds new light on old controversies.The challenges of the expanded availability of genomic information: an agenda-setting paper.ERIC: a new governance tool for biobanking.The European General Data Protection Regulation: challenges and considerations for iPSC researchers and biobanks.Pharmaceutical knowledge governance: a human rights perspective.Oversight of EU medical data transfers – an administrative law perspective on cross-border biomedical research administration.Consent and research governance in biobanks: evidence from focus groups with medical researchers.
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P2860
From single biobanks to international networks: developing e-governance
description
2011 nî lūn-bûn
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2011 թուականի Սեպտեմբերին հրատարակուած գիտական յօդուած
@hyw
2011 թվականի սեպտեմբերին հրատարակված գիտական հոդված
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2011年の論文
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2011年論文
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2011年論文
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2011年論文
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2011年論文
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2011年論文
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2011年论文
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name
From single biobanks to international networks: developing e-governance
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From single biobanks to international networks: developing e-governance
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From single biobanks to international networks: developing e-governance
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From single biobanks to international networks: developing e-governance
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From single biobanks to international networks: developing e-governance
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From single biobanks to international networks: developing e-governance
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From single biobanks to international networks: developing e-governance
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From single biobanks to international networks: developing e-governance
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From single biobanks to international networks: developing e-governance
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From single biobanks to international networks: developing e-governance
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From single biobanks to international networks: developing e-governance
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From single biobanks to international networks: developing e-governance
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From single biobanks to international networks: developing e-governance
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10.1007/S00439-011-1063-0
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2011-09-01T00:00:00Z
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1024987482