Data sharing policy design for consortia: challenges for sustainability
about
StemBANCC: Governing Access to Material and Data in a Large Stem Cell Research ConsortiumAttitudes of research participants and the general public towards genomic data sharing: a systematic literature review'Pop-Up' Governance: developing internal governance frameworks for consortia: the example of UK10KFrom the principles of genomic data sharing to the practices of data access committeesRegistered access: a 'Triple-A' approach.Equipping Physiologists with an Informatics Tool Chest: Toward an Integerated Mitochondrial Phenome."You want the right amount of oversight": interviews with data access committee members and experts on genomic data access.Expanding Access to Large-Scale Genomic Data While Promoting Privacy: A Game Theoretic Approach.The national biomarker development alliance: confronting the poor productivity of biomarker research and development.Analysis of five years of controlled access and data sharing compliance at the International Cancer Genome Consortium.The challenges of the expanded availability of genomic information: an agenda-setting paper.The European General Data Protection Regulation: challenges and considerations for iPSC researchers and biobanks.Balancing the local and the universal in maintaining ethical access to a genomics biobank.Including all voices in international data-sharing governance.Ethical concerns on sharing genomic data including patients' family members.
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Data sharing policy design for consortia: challenges for sustainability
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2014 nî lūn-bûn
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2014 թուականին հրատարակուած գիտական յօդուած
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2014 թվականին հրատարակված գիտական հոդված
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2014年の論文
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2014年論文
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2014年論文
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2014年論文
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2014年論文
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2014年論文
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2014年论文
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Data sharing policy design for consortia: challenges for sustainability
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Data sharing policy design for consortia: challenges for sustainability
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Data sharing policy design for consortia: challenges for sustainability
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Data sharing policy design for consortia: challenges for sustainability
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Data sharing policy design for consortia: challenges for sustainability
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Data sharing policy design for consortia: challenges for sustainability
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Data sharing policy design for consortia: challenges for sustainability
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Data sharing policy design for consortia: challenges for sustainability
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Data sharing policy design for consortia: challenges for sustainability
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Data sharing policy design for consortia: challenges for sustainability
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10.1186/GM523
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2014-01-01T00:00:00Z
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1025091334