Toward a national framework for the secondary use of health data: an American Medical Informatics Association White Paper. - Wikidata - wikimedia - TriplyDB

Toward a national framework for the secondary use of health data: an American Medical Informatics Association White Paper.

Toward a national framework for the secondary use of health data: an American Medical Informatics Association White Paper.

http://www.wikidata.org/entity/Q30442589

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Ethical and practical issues associated with aggregating databases The SAIL Databank: building a national architecture for e-health research and evaluation Making big data useful for health care: a summary of the inaugural MIT critical data conference A systematic review of barriers to data sharing in public health Building a robust, scalable and standards-driven infrastructure for secondary use of EHR data: the SHARPn project The future state of clinical data capture and documentation: a report from AMIA's 2011 Policy Meeting Designing a patient-centered user interface for access decisions about EHR data: implications from patient interviews Using patient lists to add value to integrated data repositories Establishing the role of honest broker: bridging the gap between protecting personal health data and clinical research efficiency Overview of the American Society for Radiation Oncology-National Institutes of Health-American Association of Physicists in Medicine Workshop 2015: Exploring Opportunities for Radiation Oncology in the Era of Big Data An integrated, ontology-driven approach to constructing observational databases for research Secondary use of clinical data: the Vanderbilt approach Beyond information retrieval and electronic health record use: competencies in clinical informatics for medical education Quantifying the Correctness, Computational Complexity, and Security of Privacy-Preserving String Comparators for Record Linkage Grid-enabled measures: using Science 2.0 to standardize measures and share data Consortium for oral health-related informatics: improving dental research, education, and treatment Never too old for anonymity: a statistical standard for demographic data sharing via the HIPAA Privacy Rule Evaluating re-identification risks with respect to the HIPAA privacy rule caTIES: a grid based system for coding and retrieval of surgical pathology reports and tissue specimens in support of translational research The population health record: concepts, definition, design, and implementation People and organizational issues in research systems implementation Towards a data sharing culture: recommendations for leadership from academic health centers Identifying data sharing in biomedical literature Methods and dimensions of electronic health record data quality assessment: enabling reuse for clinical research Ontology-based data integration between clinical and research systems Using Informatics to Improve the Care of Patients Susceptible to Malignant Hyperthermia.Acceptability of a personally controlled health record in a community-based setting: implications for policy and design Adjusting for unmeasured confounding in non-randomised longitudinal studies: a methodological review.Review and evaluation of electronic health records-driven phenotype algorithm authoring tools for clinical and translational research.Reuse of clinical data.Health data use, stewardship, and governance: ongoing gaps and challenges: a report from AMIA's 2012 Health Policy Meeting.Data for cancer comparative effectiveness research: past, present, and future potential.A framework for understanding cancer comparative effectiveness research data needs PROTEMPA: a method for specifying and identifying temporal sequences in retrospective data for patient selection.Transparent reporting of data quality in distributed data networks.Orchestrating differential data access for translational research: a pilot implementation.HIS-based Kaplan-Meier plots--a single source approach for documenting and reusing routine survival information.Barriers to retrieving patient information from electronic health record data: failure analysis from the TREC Medical Records Track.Evaluation of data completeness in the electronic health record for the purpose of patient recruitment into clinical trials: a retrospective analysis of element presence.Caveats for the use of operational electronic health record data in comparative effectiveness research.

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Toward a national framework for the secondary use of health data: an American Medical Informatics Association White Paper.

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Don E Detmer

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