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Patients' views on identifiability of samples and informed consent for genetic research.

Patients' views on identifiability of samples and informed consent for genetic research.

http://www.wikidata.org/entity/Q36761049

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The evolution of biobanking best practices Stakeholders' perspectives on biobank-based genomic research: systematic review of the literature Conducting a large, multi-site survey about patients' views on broad consent: challenges and solutions Genomics really gets personal: how exome and whole genome sequencing challenge the ethical framework of human genetics research Balancing Benefits and Risks of Immortal Data: Participants' Views of Open Consent in the Personal Genome Project How anonymous is 'anonymous'? Some suggestions towards a coherent universal coding system for genetic samples Public perspectives regarding data-sharing practices in genomics research To share or not to share: a randomized trial of consent for data sharing in genome research Ethical implications of the use of whole genome methods in medical research Respecting donors to biobank research.Parent perspectives on privacy and governance for a pediatric repository of non-biological, research data.Genomic data in the electronic medical record: perspectives from a biobank community advisory board.A systematic literature review of individuals' perspectives on broad consent and data sharing in the United States.Identifiability of DNA data: the need for consistent federal policy.Evaluating the quality of information about alternatives to research participation in oncology consent forms.Meeting the governance challenges of next-generation biorepository research.Strategies to work with HLA data in human populations for histocompatibility, clinical transplantation, epidemiology and population genetics: HLA-NET methodological recommendations Is deidentification sufficient to protect health privacy in research?The translational potential of research on the ethical, legal, and social implications of genomics Patient perspectives on group benefits and harms in genetic research.Surrogate receptivity to participation in critical illness genetic research: aligning research oversight and stakeholder concerns.Informed consent in genomics and genetic research.Considerations in the construction of an instrument to assess attitudes regarding critical illness gene variation research Managing patient expectations about deidentification.Does difficulty functioning in the surrogate role equate to vulnerability in critical illness research? Use of path analysis to examine the relationship between difficulty providing substituted judgment and receptivity to critical illness research p Genetics researchers' and IRB professionals' attitudes toward genetic research review: a comparative analysis.Perspectives of Decisional Surrogates and Patients Regarding Critical Illness Genetic Research Attitudes Toward Risk and Informed Consent for Research on Medical Practices: A Cross-sectional Survey Pediatric biobanks: approaching informed consent for continuing research after children grow up.Patient Perspectives on the Learning Health System: The Importance of Trust and Shared Decision Making.Specimen collection for induced pluripotent stem cell research: harmonizing the approach to informed consent Raising Genomic Citizens: Adolescents and the Return of Secondary Genomic Findings.Public opinion about the importance of privacy in biobank research.Relevant Information and Informed Consent in Research: In Defense of the Subjective Standard of Disclosure.The ethical use of existing samples for genome research.Informed consent for human genetic and genomic studies: a systematic review.A Survey of Scientist and Policy Makers' Attitudes Toward Research on Stored Human Biological Materials in Sri Lanka.Controlling the signal: Practical privacy protection of genomic data sharing through Beacon services.Factors associated with participation by African Americans in a study of the genetics of glaucoma.A comparison of institutional review board professionals' and patients' views on consent for research on medical practices.

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P2860

Patients' views on identifiability of samples and informed consent for genetic research.

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2008年の論文

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2008年論文

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2008年論文

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2008年論文

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2008年論文

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2008年論文

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2008年论文

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2008年论文

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2008年论文

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name

Patients' views on identifiability of samples and informed consent for genetic research.

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Patients' views on identifiability of samples and informed consent for genetic research.

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Patients' views on identifiability of samples and informed consent for genetic research.

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Patients' views on identifiability of samples and informed consent for genetic research.

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Patients' views on identifiability of samples and informed consent for genetic research.

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American Journal of Bioethics

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Patients' views on identifiability of samples and informed consent for genetic research.

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Brian R Clarridge

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Debra Schwinn

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Dragana Bolcic-Jankovic

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Jeffrey R Botkin

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Mark Brown

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Mark Hughes

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Pamela Sankar

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Sara Chandros Hull

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P2860

Genetics. No longer de-identified

Informed consent for genetic research on stored tissue samples.

Genetics. Genomic research and human subject privacy.

Disclosing individual genetic results to research participants.

Informed consent for research on stored blood and tissue samples: a survey of institutional review board practices.

Problematic variation in local institutional review of a multicenter genetic epidemiology study.

Why surgical patients do not donate tissue for commercial research: review of records.

The debate over research on stored biological samples: what do sources think?

Informed consent and biobanks: a population-based study of attitudes towards tissue donation for genetic research.

Consent for genetic research in a general population: the NHANES experience.

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10.1080/15265160802478404

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10

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8

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Jeremy Sugarman

Richard R Sharp

Benjamin S Wilfond

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2008-10-01T00:00:00Z

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19003716

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informed consent

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4819322

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