about
Share and share alike: deciding how to distribute the scientific and social benefits of genomic dataCommunity involvement in the ethical review of genetic research: lessons from American Indian and Alaska Native populationsWill investments in large-scale prospective cohorts and biobanks limit our ability to discover weaker, less common genetic and environmental contributors to complex diseases?Ethical issues in environmental health researchBeyond race: towards a whole-genome perspective on human populations and genetic variationThe OHRP and SUPPORTBuilding a Central Repository for Research Ethics Consultation Data: A Proposal for a Standard Data Collection ToolResearch ethics consultation: ethical and professional practice challenges and recommendationsThe establishment of research ethics consultation services (RECS): an emerging research resourceOffering aggregate results to participants in genomic research: opportunities and challengesReturn of results in the genomic medicine projects of the eMERGE networkRelationships hold the key to trustworthy and productive translational science: recommendations for expanding community engagement in biomedical research'Someone should oversee it': patient perspectives on the ethical issues arising with the regulation of probiotics.Return of genomic results to research participants: the floor, the ceiling, and the choices in between.The ethical hazards and programmatic challenges of genomic newborn screening.Restoring and preserving trust in biomedical research.Clinical Sequencing Exploratory Research Consortium: Accelerating Evidence-Based Practice of Genomic Medicine.The challenge of informed consent and return of results in translational genomics: empirical analysis and recommendations.The translational potential of research on the ethical, legal, and social implications of genomicsEthical and practical guidelines for reporting genetic research results to study participants: updated guidelines from a National Heart, Lung, and Blood Institute working groupHelping patients make informed choices about probiotics: a need for research.How patients view probiotics: findings from a multicenter study of patients with inflammatory bowel disease and irritable bowel syndromeExperiences of patients with chronic gastrointestinal conditions: in their own wordsEthical Discourse about the Modification of Food for Therapeutic Purposes: How Patients with Gastrointestinal Diseases View the Good, the Bad, and the Healthy.Ethical considerations in testing workers for the -Glu69 marker of genetic susceptibility to chronic beryllium disease.Ethical issues in medical-sequencing research: implications of genotype-phenotype studies for individuals and populations.Protecting third parties in human subjects researchPatients' views on identifiability of samples and informed consent for genetic research.Views regarding the training of ethics consultants: a survey of physicians caring for patients in ICUNavigating a research partnership between academia and industry to assess the impact of personalized genetic testingCommunity-Engaged Research Ethics Review: Exploring Flexibility in Federal RegulationsTransforming the culture of biomedical research from compliance to trustworthiness: insights from nonmedical sectors.Prepublication review of medical ethics research: cause for concern.Research on environmental health interventions: ethical problems and solutions.A systematic review of activities at a high-volume ethics consultation service.Consumer Perspectives on Access to Direct-to-Consumer Genetic Testing: Role of Demographic Factors and the Testing Experience.An analysis of online messages about probiotics.What to do with the could-be-knowns of genomic medicine.How disease advocacy organizations participate in clinical research: a survey of genetic organizations.Moral attitudes and beliefs among couples pursuing PGD for sex selection.
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P50
name
Richard R Sharp
@en
type
label
Richard R Sharp
@en
prefLabel
Richard R Sharp
@en