Duty to disclose what? Querying the putative obligation to return research results to participants.
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The Legal Implications of Report-Back in Household Exposure StudiesDo researchers have an obligation to actively look for genetic incidental findings?Return of individual research results from genome-wide association studies: experience of the Electronic Medical Records and Genomics (eMERGE) NetworkOffering aggregate results to participants in genomic research: opportunities and challengesRecommendations for the return of research results to study participants and guardians: a report from the Children's Oncology GroupNot so simple: a quasi-experimental study of how researchers adjudicate genetic research resultsIRB chairs' perspectives on genotype-driven research recruitment.Recommendations for ethical approaches to genotype-driven research recruitment.When research seems like clinical care: a qualitative study of the communication of individual cancer genetic research resultsSharing data and results with study participants: report on a survey of cultural anthropologists.Utilizing Focus Groups with Potential Participants and Their Parents: An Approach to Inform Study Design in a Large Clinical TrialReturn of results: ethical and legal distinctions between research and clinical care.Ethical challenges in genotype-driven research recruitmentProspective biorepository participants' perspectives on access to research results.A framework for analyzing the ethics of disclosing genetic research findings.Managing clinically significant findings in research: the UK10K example.Researcher practices on returning genetic research results.Preferences regarding genetic research results: comparing veterans and nonveterans responsesEthical and practical guidelines for reporting genetic research results to study participants: updated guidelines from a National Heart, Lung, and Blood Institute working groupConfronting real time ethical, legal, and social issues in the Electronic Medical Records and Genomics (eMERGE) Consortium.A post-trial survey to assess the impact of dissemination of results and unmasking on participants in a 13-year randomised controlled trial on age-related cataractOpinions and intentions of parents of an autistic child toward genetic research results: two typical profilesInformed consent in genomics and genetic research.Public perspectives on returning genetics and genomics research results.Individual genetic and genomic research results and the tradition of informed consent: exploring US review board guidance.Researchers' opinions towards the communication of results of biobank research: a survey study.The meaning of genetic research results: reflections from individuals with and without a known genetic disorder.One thing leads to another: the cascade of obligations when researchers report genetic research results to study participants.Researcher perspectives on disclosure of incidental findings in genetic research.Return of Genetic Research Results to Participants and Families: IRB Perspectives and RolesFunding considerations for the disclosure of genetic incidental findings in biobank research.Managing incidental genomic findings: legal obligations of clinicians.Communicating the results of research: how do participants of a cardiac rehabilitation RCT prefer to be informed?Lay Attitudes Toward Trust, Uncertainty, and the Return of Pediatric Research Results in BiobankingHow do researchers manage genetic results in practice? The experience of the multinational Colon Cancer Family Registry.Biobanks and the return of research results: out with the old and in with the new?Why do participants enroll in population biobank studies? A systematic literature review.Disclosure of individual pharmacogenomic results in research projects: when and what kind of information to return to research participants.'Mirroring' the ethics of biobanking: what should we learn from the analysis of consent documents[corrected]?Health research participants' preferences for receiving research results.
P2860
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P2860
Duty to disclose what? Querying the putative obligation to return research results to participants.
description
article científic
@ca
article scientifique
@fr
articolo scientifico
@it
artigo científico
@pt
bilimsel makale
@tr
scientific article published on March 2008
@en
vedecký článok
@sk
vetenskaplig artikel
@sv
videnskabelig artikel
@da
vědecký článek
@cs
name
Duty to disclose what? Queryin ...... earch results to participants.
@en
Duty to disclose what? Queryin ...... earch results to participants.
@nl
type
label
Duty to disclose what? Queryin ...... earch results to participants.
@en
Duty to disclose what? Queryin ...... earch results to participants.
@nl
prefLabel
Duty to disclose what? Queryin ...... earch results to participants.
@en
Duty to disclose what? Queryin ...... earch results to participants.
@nl
P2093
P356
P1476
Duty to disclose what? Queryin ...... earch results to participants.
@en
P2093
F A Miller
J S Robert
M Giacomini
R Christensen
P304
P356
10.1136/JME.2006.020289
P577
2008-03-01T00:00:00Z