The beliefs, motivations, and expectations of parents who have enrolled their children in a genetic biorepository
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Public preferences for the return of research results in genetic research: a conjoint analysisGenomic data in the electronic medical record: perspectives from a biobank community advisory board.Beliefs and attitudes towards participating in genetic research - a population based cross-sectional study.Expectation versus Reality: The Impact of Utility on Emotional Outcomes after Returning Individualized Genetic Research Results in Pediatric Rare Disease Research, a Qualitative Interview Study.Preferences for results delivery from exome sequencing/genome sequencingHow Much Control Do Children and Adolescents Have over Genomic Testing, Parental Access to Their Results, and Parental Communication of Those Results to Others?Regulating biobanking with children's tissue: a legal analysis and the experts' viewStakeholders' opinions on the implementation of pediatric whole exome sequencing: implications for informed consent.How could disclosing incidental information from whole-genome sequencing affect patient behavior?Adolescent perspectives on the return of individual results in genomic addiction research.Pharmacogenetics in clinical pediatrics: challenges and strategies.The Informed Cohort Oversight Board: From Values to ArchitecturePaediatric biobanking: Dutch experts reflecting on appropriate legal standards for practice.Why do participants enroll in population biobank studies? A systematic literature review.Incidental findings from clinical genome-wide sequencing: a review.Whole exome or genome sequencing: nurses need to prepare families for the possibilities.Survey of motivation to participate in a birth cohort.Guidelines for return of research results from pediatric genomic studies: deliberations of the Boston Children's Hospital Gene Partnership Informed Cohort Oversight Board.Participant Satisfaction With a Preference-Setting Tool for the Return of Individual Research Results in Pediatric Genomic Research.Views of Cohort Study Participants about Returning Research Results in the Context of Precision Medicine.Understanding of informed consent by parents of children enrolled in a genetic biobank.Prior opioid exposure influences parents' sharing of their children's CYP2D6 research results.Preferences for the Return of Individual Results From Research on Pediatric Biobank Samples.The development of a preference-setting model for the return of individual genomic research results.Parental preferences toward genomic sequencing for non-medically actionable conditions in children: a discrete-choice experiment.Pediatric Issues in Return of Results and Incidental Findings: Weighing Autonomy and Best Interests.Genetics professionals' perspectives on reporting incidental findings from clinical genome-wide sequencingWhole genomes, small children, big questions
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The beliefs, motivations, and expectations of parents who have enrolled their children in a genetic biorepository
description
article científic
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article scientifique
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articolo scientifico
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artigo científico
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bilimsel makale
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scientific article published on 26 January 2012
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vedecký článok
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vetenskaplig artikel
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videnskabelig artikel
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vědecký článek
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name
The beliefs, motivations, and ...... ren in a genetic biorepository
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The beliefs, motivations, and ...... en in a genetic biorepository.
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type
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The beliefs, motivations, and ...... ren in a genetic biorepository
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The beliefs, motivations, and ...... en in a genetic biorepository.
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The beliefs, motivations, and ...... ren in a genetic biorepository
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The beliefs, motivations, and ...... en in a genetic biorepository.
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The beliefs, motivations, and ...... ren in a genetic biorepository
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Catherine M Clinton
Erin D Harris
Jonathan G Amatruda
Noelle L Huntington
Patrick L Taylor
Sarah K Savage
Sonja I Ziniel
P2860
P2888
P304
P356
10.1038/GIM.2011.25
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P577
2012-01-26T00:00:00Z
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P6179
1013967072