Understanding of informed consent by parents of children enrolled in a genetic biobank. - Wikidata - wikimedia - TriplyDB

Understanding of informed consent by parents of children enrolled in a genetic biobank.

Understanding of informed consent by parents of children enrolled in a genetic biobank.

http://www.wikidata.org/entity/Q43957522

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Parental perspectives on consent for participation in large-scale, non-biological data repositories Models of consent to return of incidental findings in genomic research Regulating biobanking with children's tissue: a legal analysis and the experts' view Measuring genetic knowledge: a brief survey instrument for adolescents and adults.Paediatric biobanking: Dutch experts reflecting on appropriate legal standards for practice.Development of Plain Language Supplemental Materials for the Biobank Informed Consent Process.Biobank attributes associated with higher patient participation: a randomized study.Participants' Understanding of Informed Consent for Biobanking: A Systematic Review.Parent and Child Perceptions of the Benefits of Research Participation.Ethics of children's participation in a Saudi biobank: an exploratory survey.Pediatric Whole Exome Sequencing: an Assessment of Parents' Perceived and Actual Understanding.Genetic knowledge and attitudes of parents of children with congenital heart defects.A qualitative study of adolescents' understanding of biobanks and their attitudes toward participation, re-contact, and data sharing Clarifying ethical responsibilities in pediatric biobanking Parental attitudes and willingness to donate children's biospecimens for congenital heart disease research: a cross-sectional study in Shanghai, China

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P2860

Understanding of informed consent by parents of children enrolled in a genetic biobank.

http://www.wikidata.org/entity/Q43957522

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2013 nî lūn-bûn

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2013年の論文

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2013年学术文章

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2013年学术文章

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2013年学术文章

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2013年学术文章

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2013年学术文章

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2013年學術文章

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2013年學術文章

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2013年學術文章

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name

Understanding of informed consent by parents of children enrolled in a genetic biobank.

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Understanding of informed consent by parents of children enrolled in a genetic biobank.

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type

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Understanding of informed consent by parents of children enrolled in a genetic biobank.

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Understanding of informed consent by parents of children enrolled in a genetic biobank.

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Understanding of informed consent by parents of children enrolled in a genetic biobank.

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Understanding of informed consent by parents of children enrolled in a genetic biobank.

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Genetics in Medicine

P1476

Understanding of informed consent by parents of children enrolled in a genetic biobank.

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Amy K Ferketich

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Deena J Chisolm

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Jennifer Klima

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Kelly J Kelleher

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R Dawn Comstock

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Sara M Fitzgerald-Butt

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P2860

Biobanking in pediatrics: the human nonsubjects approach

Beyond “misunderstanding”: Written information and decisions about taking part in a genetic epidemiology study

Quality of informed consent: a new measure of understanding among research subjects.

Managing incidental findings and research results in genomic research involving biobanks and archived data sets.

Multiple pathways used for the targeting of thylakoid proteins in chloroplasts.

Ethical, legal, and social implications of biobanks for genetics research.

Neonatal research and the validity of informed consent obtained in the perinatal period.

Communication and informed consent in phase 1 trials: a review of the literature.

The beliefs, motivations, and expectations of parents who have enrolled their children in a genetic biorepository

Translational research in pediatrics: tissue sampling and biobanking.

P2888

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10.1038/GIM.2013.86

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