Providing research results to participants: attitudes and needs of adolescents and parents of children with cancer.
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How to share results of clinical trials with study participants?Recommendations for the return of research results to study participants and guardians: a report from the Children's Oncology GroupUtilizing Focus Groups with Potential Participants and Their Parents: An Approach to Inform Study Design in a Large Clinical TrialParticipants' uptake of clinical trial results: a randomised experiment.Researcher practices on returning genetic research results.Participants' preference for type of leaflet used to feed back the results of a randomised trial: a survey.Preferences regarding genetic research results: comparing veterans and nonveterans responsesFeedback of trial results to participants: a survey of clinicians' and patients' attitudes and experiencesExpectation versus Reality: The Impact of Utility on Emotional Outcomes after Returning Individualized Genetic Research Results in Pediatric Rare Disease Research, a Qualitative Interview Study.How Much Control Do Children and Adolescents Have over Genomic Testing, Parental Access to Their Results, and Parental Communication of Those Results to Others?Consent revisited: the impact of return of results on participants' views and expectations about trial participation.Integrative Clinical Sequencing in the Management of Refractory or Relapsed Cancer in Youth.Disclosure of incidental findings from next-generation sequencing in pediatric genomic researchThe beliefs, motivations, and expectations of parents who have enrolled their children in a genetic biorepositoryCommunicating the results of research: how do participants of a cardiac rehabilitation RCT prefer to be informed?Adolescent perspectives on the return of individual results in genomic addiction research.How, who, and when: preferences for delivery of genome sequencing results among women diagnosed with breast cancer at a young age.Disclosure of individualized research results: a precautionary approach.Parental views on tissue banking in pediatric oncology patients.Evidence of broad-based family support for the use of archival childhood tumour samples in future research.Discussing molecular testing in oncology care: Comparing patient and physician information preferences.Health research participants' preferences for receiving research results.Understanding Ethical Issues of Research Participation From the Perspective of Participating Children and Adolescents: A Systematic Review.Qualitative study of participants' perceptions and preferences regarding research dissemination.Impact on parents of receiving individualized feedback of psychological testing conducted with children as part of a research study.Improving Communication in Adolescent Cancer Care: A Multiperspective Study.Researchers' experiences with and perceptions of returning results to participants: Study protocol.Paediatric biobanks: what makes them so unique?Returning research results: caregivers' reactions following computerized cognitive training among childhood cancer survivorsClinically Significant? Depends on Whom You AskRecruiting Children for Clinical Trials: Lessons From Pediatric Oncology
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P2860
Providing research results to participants: attitudes and needs of adolescents and parents of children with cancer.
description
article científic
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article scientifique
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articolo scientifico
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artigo científico
@pt
bilimsel makale
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scientific article published on 21 January 2009
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vedecký článok
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vetenskaplig artikel
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videnskabelig artikel
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vědecký článek
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name
Providing research results to ...... rents of children with cancer.
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Providing research results to ...... rents of children with cancer.
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type
label
Providing research results to ...... rents of children with cancer.
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Providing research results to ...... rents of children with cancer.
@nl
prefLabel
Providing research results to ...... rents of children with cancer.
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Providing research results to ...... rents of children with cancer.
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P2093
P2860
P50
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P1476
Providing research results to ...... rents of children with cancer.
@en
P2093
Albert Moghrabi
Caron Strahlendorf
Conrad Vincent Fernandez
Darcy Santor
Raymond Carlton Barfield
Rebecca Davis Pentz
P2860
P304
P356
10.1200/JCO.2008.18.5223
P407
P577
2009-01-21T00:00:00Z