Multidimensional results reporting to participants in genomic studies: getting it right.
about
Participant use and communication of findings from exome sequencing: a mixed-methods study.Getting personalized cancer genome analysis into the clinic: the challenges in bioinformaticsIRB chairs' perspectives on genotype-driven research recruitment.Recommendations for ethical approaches to genotype-driven research recruitment.Parents' preferences for return of results in pediatric genomic research.Return of results: ethical and legal distinctions between research and clinical care.Models of consent to return of incidental findings in genomic researchA framework for analyzing the ethics of disclosing genetic research findings.Managing incidental findings and research results in genomic research involving biobanks and archived data sets.Genomic sequencing for psychiatric disorders: promise and challengeFinding Fault? Exploring Legal Duties to Return Incidental Findings in Genomic Research.Approaches to informed consent for hypothesis-testing and hypothesis-generating clinical genomics research.Qualitative study of knowledge and attitudes to biobanking among lay persons in NigeriaThe First Amendment Right to Speak About the Human Genome.The unintended implications of blurring the line between research and clinical care in a genomic age.An approach to pediatric exome and genome sequencing.Offering individual genetic research results: context matters.Disclosing pathogenic genetic variants to research participants: quantifying an emerging ethical responsibilityGenetics specialists' perspectives on disclosure of genomic incidental findings in the clinical setting.Intentions to receive individual results from whole-genome sequencing among participants in the ClinSeq study.The beliefs, motivations, and expectations of parents who have enrolled their children in a genetic biorepositoryIncidental findings in the era of whole genome sequencing?Taxonomizing, sizing, and overcoming the incidentalome.Communicating new knowledge on previously reported genetic variants.The Informed Cohort Oversight Board: From Values to ArchitectureUsing electronic health records to drive discovery in disease genomics.Disclosure of individual pharmacogenomic results in research projects: when and what kind of information to return to research participants.Incidental findings from clinical genome-wide sequencing: a review.Next-generation sequencing applied to rare diseases genomics.Guidelines for return of research results from pediatric genomic studies: deliberations of the Boston Children's Hospital Gene Partnership Informed Cohort Oversight Board.Participant Satisfaction With a Preference-Setting Tool for the Return of Individual Research Results in Pediatric Genomic Research.Feedback of individual genetic results to research participants: in favor of a qualified disclosure policy.The development of a preference-setting model for the return of individual genomic research results.Disclosure and management of research findings in stem cell research and banking: policy statement.Disclosure of Cardiac Variants of Uncertain Significance Results in an Exome Cohort.Pediatric Issues in Return of Results and Incidental Findings: Weighing Autonomy and Best Interests.Overcoming the obstacles to returning genomic research results.Return of research results: general principles and international perspectives.Is there concordance in attitudes and beliefs between parents and scientists about autism spectrum disorder?Comment on "Multidimensional results reporting to participants in genomic studies: getting it right".
P2860
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P2860
Multidimensional results reporting to participants in genomic studies: getting it right.
description
2010 nî lūn-bûn
@nan
2010年の論文
@ja
2010年学术文章
@wuu
2010年学术文章
@zh
2010年学术文章
@zh-cn
2010年学术文章
@zh-hans
2010年学术文章
@zh-my
2010年学术文章
@zh-sg
2010年學術文章
@yue
2010年學術文章
@zh-hant
name
Multidimensional results reporting to participants in genomic studies: getting it right.
@en
Multidimensional results reporting to participants in genomic studies: getting it right.
@nl
type
label
Multidimensional results reporting to participants in genomic studies: getting it right.
@en
Multidimensional results reporting to participants in genomic studies: getting it right.
@nl
prefLabel
Multidimensional results reporting to participants in genomic studies: getting it right.
@en
Multidimensional results reporting to participants in genomic studies: getting it right.
@nl
P2860
P1476
Multidimensional results reporting to participants in genomic studies: getting it right.
@en
P2093
Patrick L Taylor
P2860
P304
P356
10.1126/SCITRANSLMED.3000809
P407
P50
P577
2010-06-01T00:00:00Z