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Sharing health data: good intentions are not enoughData sharing in genomics--re-shaping scientific practiceRare disease research: Breaking the privacy barrierBest Practices for Ethical Sharing of Individual-Level Health Research Data From Low- and Middle-Income SettingsResearch participants' perceptions and views on consent for biobank research: a review of empirical data and ethical analysisImproving the informed consent process in international collaborative rare disease research: effective consent for effective research.International Charter of principles for sharing bio-specimens and dataTrust, Respect, and Reciprocity: Informing Culturally Appropriate Data-Sharing Practice in VietnamMultidisciplinary approach to genomics research in Africa: the AfriCRAN modelFair Shares and Sharing Fairly: A Survey of Public Views on Open Science, Informed Consent and Participatory Research in BiobankingA perpetual source of DNA or something really different: ethical issues in the creation of cell lines for African genomics researchParticipant-Centric Initiatives: Tools to Facilitate Engagement In ResearchInformed Consent in Genome-Scale Research: What Do Prospective Participants Think?Offering aggregate results to participants in genomic research: opportunities and challengesSeeking consent to genetic and genomic research in a rural Ghanaian setting: a qualitative study of the MalariaGEN experienceEthical issues in human genomics research in developing countriesCaught you: threats to confidentiality due to the public release of large-scale genetic data setsComparison of participant information and informed consent forms of five European studies in genetic isolated populationsEthical data release in genome-wide association studies in developing countriesEthical implications of the use of whole genome methods in medical researchPatient/family views on data sharing in rare diseases: study in the European LeukoTreat project.Open consent, biobanking and data protection law: can open consent be 'informed' under the forthcoming data protection regulation?Tailoring the process of informed consent in genetic and genomic researchBiobanking residual tissues.Meeting the governance challenges of next-generation biorepository research.Empirical evaluation of the need for 'on-going consent' in clinical research.Approaches to informed consent for hypothesis-testing and hypothesis-generating clinical genomics research.Dynamic Consent: a potential solution to some of the challenges of modern biomedical research."I passed the test!" Evidence of diagnostic misconception in the recruitment of population controls for an H3Africa genomic study in Cape Town, South Africa.Understanding of research, genetics and genetic research in a rapid ethical assessment in north west Cameroon.Effect of ethnicity, gender and drug use history on achieving high rates of affirmative informed consent for genetics research: impact of sharing with a national repository.Leaves imitate trees: Minnesota Hmong concepts of heredity and applications to genomics research.Engaging Hmong adults in genomic and pharmacogenomic research: Toward reducing health disparities in genomic knowledge using a community-based participatory research approach.Potential relationship between single nucleotide polymorphisms used in forensic genetics and diseases or other traits in European population.Social and Communicative Functions of Informed Consent Forms in East Asia and Beyond.A tiered-layered-staged model for informed consent in personal genome testing.The challenges of the expanded availability of genomic information: an agenda-setting paper.Stem cell policy exceptionalism: proceed with caution.Big Data, Small Talk: Lessons from the Ethical Practices of Interpersonal Communication for the Management of Biomedical Big Data
P2860
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P2860
description
2008 nî lūn-bûn
@nan
2008 թուականի Սեպտեմբերին հրատարակուած գիտական յօդուած
@hyw
2008 թվականի սեպտեմբերին հրատարակված գիտական հոդված
@hy
2008年の論文
@ja
2008年論文
@yue
2008年論文
@zh-hant
2008年論文
@zh-hk
2008年論文
@zh-mo
2008年論文
@zh-tw
2008年论文
@wuu
name
Informed consent in the genomics era
@ast
Informed consent in the genomics era
@en
Informed consent in the genomics era
@nl
type
label
Informed consent in the genomics era
@ast
Informed consent in the genomics era
@en
Informed consent in the genomics era
@nl
prefLabel
Informed consent in the genomics era
@ast
Informed consent in the genomics era
@en
Informed consent in the genomics era
@nl
P2860
P1433
P1476
Informed consent in the genomics era
@en
P2093
Matthias Wjst
Peter Pramstaller
P2860
P356
10.1371/JOURNAL.PMED.0050192
P407
P577
2008-09-16T00:00:00Z