Ethical issues in human genomics research in developing countries - sprookjes - yvandenbroek - TriplyDB

Ethical issues in human genomics research in developing countries

Ethical issues in human genomics research in developing countries

http://www.wikidata.org/entity/Q28741128

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Consent and community engagement in diverse research contexts Does science need bioethicists? Ethics and science collaboration in biomedical research Sharing the Knowledge: Sharing Aggregate Genomic Findings with Research Participants in Developing Countries Sharing Public Health Research Data: Toward the Development of Ethical Data-Sharing Practice in Low- and Middle-Income Settings Multidisciplinary approach to genomics research in Africa: the AfriCRAN model Informed consent and ethical re-use of African genomic data The H3Africa policy framework: negotiating fairness in genomics Understandings of genomic research in developing countries: a qualitative study of the views of MalariaGEN participants in Mali.Ethical issues in the export, storage and reuse of human biological samples in biomedical research: perspectives of key stakeholders in Ghana and Kenya Knowing who to trust: exploring the role of 'ethical metadata' in mediating risk of harm in collaborative genomics research in Africa A human rights approach to an international code of conduct for genomic and clinical data sharing Voluntary participation and comprehension of informed consent in a genetic epidemiological study of breast cancer in Nigeria Ethical and legal implications of whole genome and whole exome sequencing in African populations.Systematic review of birth cohort studies in Africa Seeking consent to genetic and genomic research in a rural Ghanaian setting: a qualitative study of the MalariaGEN experience Moral and scientific boundaries: research ethics on the Thai-Burma border Imputation-based meta-analysis of severe malaria in three African populations."It's all about trust": reflections of researchers on the complexity and controversy surrounding biobanking in South Africa The elusive ideal of inclusiveness: lessons from a worldwide survey of neurologists on the ethical issues raised by whole-genome sequencing Ethical, social, and cultural issues related to clinical genetic testing and counseling in low- and middle-income countries: protocol for a systematic review Ethical challenges in integrating patient-care with clinical research in a resource-limited setting: perspectives from Papua New Guinea.Community engagement strategies for genomic studies in Africa: a review of the literature.Genome-wide association studies in Africans and African Americans: expanding the framework of the genomics of human traits and disease.Exploring researchers' experiences of working with a researcher-driven, population-specific community advisory board in a South African schizophrenia genomics study Institutional review board (IRB) and ethical issues in clinical research."The keeping is the problem": A qualitative study of IRB-member perspectives in Botswana on the collection, use, and storage of human biological samples for research.Regulation of genomic and biobanking research in Africa: a content analysis of ethics guidelines, policies and procedures from 22 African countries."I passed the test!" Evidence of diagnostic misconception in the recruitment of population controls for an H3Africa genomic study in Cape Town, South Africa.Providing ethical guidance for collaborative research in developing countries.Investigating the potential for ethnic group harm in collaborative genomics research in Africa: is ethnic stigmatisation likely?Addressing ethical challenges in the Genetics Substudy of the National Eye Survey of Trinidad and Tobago (GSNESTT).Inclusion and exclusion in nutrigenetics clinical research: ethical and scientific challenges.Community members' engagement with and involvement in genomic research: lessons to learn from the field.Current needs for human and medical genomics research infrastructure in low and middle income countries.Social and Communicative Functions of Informed Consent Forms in East Asia and Beyond."That is why I have trust": unpacking what 'trust' means to participants in international genetic research in Pakistan and Denmark.Equity in international health research collaborations in Africa: Perceptions and expectations of African researchers.Ethical Issues Surrounding Body Integrity and Research.Large Scale Genetic Research on Neuropsychiatric Disorders in African Populations is Needed.Using iterative learning to improve understanding during the informed consent process in a South African psychiatric genomics study.

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Ethical issues in human genomics research in developing countries

http://www.wikidata.org/entity/Q28741128

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BMC Medical Ethics

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Muntaser Ibrahim

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Susan J Bull

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P2860

How malaria has affected the human genome and what human genetics can teach us about malaria

Grand challenges in global health: community engagement in research in developing countries

Research ethics recommendations for whole-genome research: consensus statement

Data sharing in genomics--re-shaping scientific practice

Informed consent in the genomics era

Share and share alike: deciding how to distribute the scientific and social benefits of genomic data

From genetic privacy to open consent

Research ethics and the challenge of whole-genome sequencing

Reuse of samples: ethical issues encountered by two institutional ethics review committees in Kenya

Taking tissue seriously means taking communities seriously

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Dominic P. Kwiatkowski

Odile Mercereau-Puijalon

Jantina de Vries

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research ethics

information sensitivity

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