Informed consent for whole-genome sequencing studies in the clinical setting. Proposed recommendations on essential content and process
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Clinical Genetic Testing in GastroenterologyIncidental Findings with Genomic Testing: Implications for Genetic Counseling PracticeReflecting on earlier experiences with unsolicited findings: points to consider for next-generation sequencing and informed consent in diagnosticsPractice variation across consent templates for biobank research. a survey of German biobanksTo disclose, or not to disclose? Context matters.Models of consent to return of incidental findings in genomic researchInformed consent for exome sequencing in diagnostics: exploring first experiences and views of professionals and patients.The challenge of consent in clinical genome-wide testing.The challenge of informed consent and return of results in translational genomics: empirical analysis and recommendations.Understanding patient and provider perceptions and expectations of genomic medicine.Researchers' views on informed consent for return of secondary results in genomic research.A view on clinical genetics and genomics in Spain: of challenges and opportunitiesIntegrating genomics into clinical oncology: ethical and social challenges from proponents of personalized medicine.Next-generation sequencing in childhood disorders.Whole exome or genome sequencing: nurses need to prepare families for the possibilities.Defining and managing incidental findings in genetic and genomic practice.Next generation sequencing: considering the ethics.International requirements for consent in biobank research: qualitative review of research guidelines.Is there a duty to recontact in light of new genetic technologies? A systematic review of the literature.Recommendations for the integration of genomics into clinical practiceSocial and Communicative Functions of Informed Consent Forms in East Asia and Beyond.How do clinical genetics consent forms address the familial approach to confidentiality and incidental findings? A mixed-methods study.A review of consent practices and perspectives for pharmacogenetic testingOvercoming challenges to meaningful informed consent for whole genome sequencing in pediatric cancer research.How do providers discuss the results of pediatric exome sequencing with families?Returning pharmacogenetic secondary findings from genome sequencing: let's not put the cart before the horse.Experience of a multidisciplinary task force with exome sequencing for Mendelian disorders."Not Tied Up Neatly with a Bow": Professionals' Challenging Cases in Informed Consent for Genomic Sequencing.Parents' Perspectives on Supporting Their Decision Making in Genome-Wide Sequencing.Reply to Townsend et al.Autonomy and the patient's right 'not to know' in clinical whole-genomic sequencing.A Comparison of Whole Genome Sequencing to Multigene Panel Testing in Hypertrophic Cardiomyopathy Patients.Readability of informed consent forms for whole-exome and whole-genome sequencing.Variation among Consent Forms for Clinical Whole Exome Sequencing.A randomized controlled study of a consent intervention for participating in an NIH genome sequencing study.Pediatric Whole Exome Sequencing: an Assessment of Parents' Perceived and Actual Understanding.[Concepts for the return of secondary genetic findings in medical diagnostics and research].Content Analysis of Informed Consent for Whole Genome Sequencing Offered by Direct-to-Consumer Genetic Testing Companies.Experiences with obtaining informed consent for genomic sequencing.Clinical providers' experiences with returning results from genomic sequencing: an interview study.
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P2860
Informed consent for whole-genome sequencing studies in the clinical setting. Proposed recommendations on essential content and process
description
2013 nî lūn-bûn
@nan
2013 թուականի Յունուարին հրատարակուած գիտական յօդուած
@hyw
2013 թվականի հունվարին հրատարակված գիտական հոդված
@hy
2013年の論文
@ja
2013年論文
@yue
2013年論文
@zh-hant
2013年論文
@zh-hk
2013年論文
@zh-mo
2013年論文
@zh-tw
2013年论文
@wuu
name
Informed consent for whole-gen ...... essential content and process
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Informed consent for whole-gen ...... essential content and process
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Informed consent for whole-gen ...... essential content and process
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type
label
Informed consent for whole-gen ...... essential content and process
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Informed consent for whole-gen ...... essential content and process
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Informed consent for whole-gen ...... essential content and process
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prefLabel
Informed consent for whole-gen ...... essential content and process
@ast
Informed consent for whole-gen ...... essential content and process
@en
Informed consent for whole-gen ...... essential content and process
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P2860
P356
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Informed consent for whole-gen ...... essential content and process
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P2093
José M Millán
Marta Mancheño
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P356
10.1038/EJHG.2012.297
P577
2013-01-16T00:00:00Z
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P6179
1049711678