Intentions to receive individual results from whole-genome sequencing among participants in the ClinSeq study. - Wikidata - awgldk - TriplyDB

Intentions to receive individual results from whole-genome sequencing among participants in the ClinSeq study.

Intentions to receive individual results from whole-genome sequencing among participants in the ClinSeq study.

http://www.wikidata.org/entity/Q36611988

about

Personal Genome Sequencing in Ostensibly Healthy Individuals and the PeopleSeq Consortium Incidental Findings with Genomic Testing: Implications for Genetic Counseling Practice Return of individual research results and incidental findings: facing the challenges of translational science Attitudes towards the sharing of genetic information with at-risk relatives: results of a quantitative survey Motivations, concerns and preferences of personal genome sequencing research participants: Baseline findings from the HealthSeq project Feedback of Individual Genetic Results to Research Participants: Is It Feasible in Europe?Return of incidental findings in genomic medicine: measuring what patients value--development of an instrument to measure preferences for information from next-generation testing (IMPRINT).Stakeholder views on secondary findings in whole-genome and whole-exome sequencing: a systematic review of quantitative and qualitative studies.Do participants in genome sequencing studies of psychiatric disorders wish to be informed of their results? A survey study Growing up in the genomic era: implications of whole-genome sequencing for children, families, and pediatric practice.Translating personalized medicine using new genetic technologies in clinical practice: the ethical issues Social and behavioral research in genomic sequencing: approaches from the Clinical Sequencing Exploratory Research Consortium Outcomes and Measures Working Group.Genomic sequencing for psychiatric disorders: promise and challenge Molecular genetic testing and the future of clinical genomics.Approaches to informed consent for hypothesis-testing and hypothesis-generating clinical genomics research.Clinical Sequencing Exploratory Research Consortium: Accelerating Evidence-Based Practice of Genomic Medicine.Informed consent for whole-genome sequencing studies in the clinical setting. Proposed recommendations on essential content and process How do research participants perceive "uncertainty" in genome sequencing?An approach to pediatric exome and genome sequencing.A new approach to assessing affect and the emotional implications of personal genomic testing for common disease risk Societal preferences for the return of incidental findings from clinical genomic sequencing: a discrete-choice experiment.Characterizing Participants in the ClinSeq Genome Sequencing Cohort as Early Adopters of a New Health Technology.Information Avoidance Tendencies, Threat Management Resources, and Interest in Genetic Sequencing Feedback.Perceived ambiguity as a barrier to intentions to learn genome sequencing results.Research participants in NGS studies want to know about incidental findings Known unknowns: building an ethics of uncertainty into genomic medicine Preferences for results delivery from exome sequencing/genome sequencing Family decision maker perspectives on the return of genetic results in biobanking research Mapping the Ethics of Translational Genomics: Situating Return of Results and Navigating the Research-Clinical Divide.Effects of informed consent for individual genome sequencing on relevant knowledge.Preferences for the provision of whole genome sequencing services among young adults.Patients' views on incidental findings from clinical exome sequencing.When Participants in Genomic Research Grow Up: Contact and Consent at the Age of Majority Research participant interest in primary, secondary, and incidental genomic findings.Stakeholders' opinions on the implementation of pediatric whole exome sequencing: implications for informed consent.Managing incidental genomic findings in clinical trials: fulfillment of the principle of justice.Engagement and communication among participants in the ClinSeq Genomic Sequencing Study.Testing personalized medicine: patient and physician expectations of next-generation genomic sequencing in late-stage cancer care.Parental attitudes, values, and beliefs toward the return of results from exome sequencing in children.My46: a Web-based tool for self-guided management of genomic test results in research and clinical settings

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P2860

Intentions to receive individual results from whole-genome sequencing among participants in the ClinSeq study.

http://www.wikidata.org/entity/Q36611988

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Amy Linn

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Barbara B Biesecker

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Flavia M Facio

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Haley Eidem

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P2860

The diploid genome sequence of an individual human

Annotating individual human genomes

Return of individual research results from genome-wide association studies: experience of the Electronic Medical Records and Genomics (eMERGE) Network

Exome sequencing: a transformative technology

Exome sequencing supports a de novo mutational paradigm for schizophrenia.

Public preferences regarding the return of individual genetic research results: findings from a qualitative focus group study

Personal genome research : what should the participant be told?

Managing incidental findings and research results in genomic research involving biobanks and archived data sets.

Future health applications of genomics: priorities for communication, behavioral, and social sciences research

Disclosing individual genetic results to research participants.

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10.1038/EJHG.2012.179

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21

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Leslie G Biesecker

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230670974

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