Changing perspectives in biobank research: from individual rights to concerns about public health regarding the return of results.
about
"Who owns your poop?": insights regarding the intersection of human microbiome research and the ELSI aspects of biobanking and related studiesPlanning for translational research in genomicsReturning individual research results for genome sequences of pancreatic cancer.Structuring public engagement for effective input in policy development on human tissue biobankingReturning findings within longitudinal cohort studies: the 1958 birth cohort as an exemplar.REXIC Project: Retrospective Cross-Sectional Study of Documentation of Informed Consent for Research Biobanking in A Public Research and Teaching Hospital.Consent for use of clinical leftover biosample: a survey among Chinese patients and the general publicApproaches to informed consent for hypothesis-testing and hypothesis-generating clinical genomics research.Attitudes of African-American parents about biobank participation and return of results for themselves and their childrenEthical aspects of human biobanks: a systematic review.Managing the Ethical Issues of Genomic Research using Pathology Specimens.Practical implementation issues and challenges for biobanks in the return of individual research results.Return of Genetic Research Results to Participants and Families: IRB Perspectives and RolesPublic participation in genetic databases: crossing the boundaries between biobanks and forensic DNA databases through the principle of solidarity.Reporting actionable research results: shared secrets can save lives.Improving international research with clinical specimens: 5 achievable objectivesIncidental findings in the era of whole genome sequencing?Factors influencing public participation in biobanking.The Bio-PIN: a concept to improve biobanking.Population biobanks and returning individual research results: mission impossible or new directions?The utility of collaborative biobanks for cardiovascular research.Next generation sequencing: considering the ethics.Incidental findings: the time is not yet ripe for a policy for biobanksWhat research participants want to know about genetic research results: the impact of "genetic exceptionalism".What is a meaningful result? Disclosing the results of genomic research in autism to research participants.Collectivizing rescue obligations in bioethics.New directions in childhood obesity research: how a comprehensive biorepository will allow better prediction of outcomes.The limits of sharing: an ethical analysis of the arguments for and against the sharing of databases and material banks.Returning Results: Let's Be Honest!International normative perspectives on the return of individual research results and incidental findings in genomic biobanks.Differentiating and evaluating common good and public good: making implicit assumptions explicit in the contexts of consent and duty to participate.Disclosure and management of research findings in stem cell research and banking: policy statement.Translating Biobank Science into Patient-Centered Language.The Ethics of General Population Preventive Genomic Sequencing: Rights and Social Justice.The research participant perspective related to the conduct of genomic cohort studies: A systematic review of the quantitative literature.Pediatric research and the return of individual research results.Return of research results: general principles and international perspectives.Towards establishing a multiple sclerosis biobank in Jordan.A review of ethical frameworks for the disclosure of individual research results in population-based genetic and genomic researchMaternal perspectives on the return of genetic results: context matters
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P2860
Changing perspectives in biobank research: from individual rights to concerns about public health regarding the return of results.
description
2009 nî lūn-bûn
@nan
2009年の論文
@ja
2009年学术文章
@wuu
2009年学术文章
@zh-cn
2009年学术文章
@zh-hans
2009年学术文章
@zh-my
2009年学术文章
@zh-sg
2009年學術文章
@yue
2009年學術文章
@zh
2009年學術文章
@zh-hant
name
Changing perspectives in bioba ...... garding the return of results.
@en
Changing perspectives in bioba ...... garding the return of results.
@nl
type
label
Changing perspectives in bioba ...... garding the return of results.
@en
Changing perspectives in bioba ...... garding the return of results.
@nl
prefLabel
Changing perspectives in bioba ...... garding the return of results.
@en
Changing perspectives in bioba ...... garding the return of results.
@nl
P2860
P356
P1476
Changing perspectives in bioba ...... garding the return of results.
@en
P2093
Joanna Stjernschantz Forsberg
Mats G Hansson
P2860
P2888
P304
P356
10.1038/EJHG.2009.87
P577
2009-05-27T00:00:00Z