What is a meaningful result? Disclosing the results of genomic research in autism to research participants.
about
Genomics and autism spectrum disorderA family with autism and rare copy number variants disrupting the Duchenne/Becker muscular dystrophy gene DMD and TRPM3Not so simple: a quasi-experimental study of how researchers adjudicate genetic research resultsStem cell banking: between traceability and identifiabilityCaregiver and adult patient perspectives on the importance of a diagnosis of 22q11.2 deletion syndrome.The meaning of genetic research results: reflections from individuals with and without a known genetic disorder.Parents' perceptions of the usefulness of chromosomal microarray analysis for children with autism spectrum disordersOne thing leads to another: the cascade of obligations when researchers report genetic research results to study participants.Parent perspectives on pediatric genetic research and implications for genotype-driven research recruitmentClinical applications of schizophrenia genetics: genetic diagnosis, risk, and counseling in the molecular eraReporting actionable research results: shared secrets can save lives.Physicians' perspectives on the uncertainties and implications of chromosomal microarray testing of children and familiesGenetic testing and genetic counseling among Medicaid-enrolled children with autism spectrum disorder in 2001 and 2007.The beliefs, motivations, and expectations of parents who have enrolled their children in a genetic biorepositoryReturn of genetic results in the familial dilated cardiomyopathy research projectAdolescent perspectives on the return of individual results in genomic addiction research.Pathogenic rare copy number variants in community-based schizophrenia suggest a potential role for clinical microarrays.Parental attitudes, values, and beliefs toward the return of results from exome sequencing in children.Risk factors for autism: translating genomic discoveries into diagnostics.The ethics of complexity. Genetics and autism, a literature review."Set in Stone" or "Ray of Hope": Parents' Beliefs About Cause and Prognosis After Genomic Testing of Children Diagnosed with ASD.Parents' perspectives on participating in genetic research in autism.What research participants want to know about genetic research results: the impact of "genetic exceptionalism".Priorities for autism spectrum disorder risk communication and ethics.International normative perspectives on the return of individual research results and incidental findings in genomic biobanks.In search of biomarkers for autism: scientific, social and ethical challenges.Does a duty of disclosure foster special treatment of genetic research participants?Overcoming the obstacles to returning genomic research results.Is there concordance in attitudes and beliefs between parents and scientists about autism spectrum disorder?Parents' Perspectives on Variants of Uncertain Significance from Chromosome Microarray Analysis.Empirical research on the ethics of genomic research.Attitudes of parents toward the return of targeted and incidental genomic research findings in children
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P2860
What is a meaningful result? Disclosing the results of genomic research in autism to research participants.
description
2010 nî lūn-bûn
@nan
2010年の論文
@ja
2010年論文
@yue
2010年論文
@zh-hant
2010年論文
@zh-hk
2010年論文
@zh-mo
2010年論文
@zh-tw
2010年论文
@wuu
2010年论文
@zh
2010年论文
@zh-cn
name
What is a meaningful result? D ...... tism to research participants.
@en
type
label
What is a meaningful result? D ...... tism to research participants.
@en
prefLabel
What is a meaningful result? D ...... tism to research participants.
@en
P2860
P356
P1476
What is a meaningful result? D ...... tism to research participants.
@en
P2093
Robin Zoe Hayeems
P2860
P2888
P304
P356
10.1038/EJHG.2010.34
P577
2010-03-17T00:00:00Z
P5875
P6179
1041422496