Community consultation and communication for a population-based DNA biobank: the Marshfield clinic personalized medicine research project - Test2 - elhamkhani - TriplyDB

Community consultation and communication for a population-based DNA biobank: the Marshfield clinic personalized medicine research project

Community consultation and communication for a population-based DNA biobank: the Marshfield clinic personalized medicine research project

http://www.wikidata.org/entity/Q28756483

about

sameAs

Big data, open science and the brain: lessons learned from genomics Stakeholder engagement: a key component of integrating genomic information into electronic health records Biobanks: importance, implications and opportunities for genetic counselors Within and beyond the communal turn to informed consent in industry-sponsored pharmacogenetics research: merits and challenges of community advisory boards Broad Consent for Research With Biological Samples: Workshop Conclusions Extracting research-quality phenotypes from electronic health records to support precision medicine Offering aggregate results to participants in genomic research: opportunities and challenges The eMERGE Network: a consortium of biorepositories linked to electronic medical records data for conducting genomic studies Consent for genetic research in the Framingham Heart Study Genetics and cardiovascular disease: a policy statement from the American Heart Association.Merging Electronic Health Record Data and Genomics for Cardiovascular Research: A Science Advisory From the American Heart Association.Recontacting participants for expanded uses of existing samples and data: a case study.Potential bias in the bank: what distinguishes refusers, nonresponders and participants in a clinic-based biobank?Unexpected findings in the exploration of African American underrepresentation in biospecimen collection and biobanks Community engagement in US biobanking: multiplicity of meaning and method.Structuring public engagement for effective input in policy development on human tissue biobanking 'Cool! and creepy': engaging with college student stakeholders in Michigan's biobank.Research ethics. Research practice and participant preferences: the growing gulf.Current practice of public involvement activities in biomedical research and innovation: a systematic qualitative review.Confronting real time ethical, legal, and social issues in the Electronic Medical Records and Genomics (eMERGE) Consortium.Genetic and ElectroNic medIcal records to predict oUtcomeS in Heart Failure patients (GENIUS-HF) - design and rationale Reasons for participating and genetic information needs among racially and ethnically diverse biobank participants: a focus group study Application of clinical text data for phenome-wide association studies (PheWASs).EngageUC: Developing an Efficient and Ethical Approach to Biobanking Research at the University of California Biology-Driven Gene-Gene Interaction Analysis of Age-Related Cataract in the eMERGE Network.Community engagement in biobanking: Experiences from the eMERGE Network.Pathogenic Mutations in Cancer-Predisposing Genes: A Survey of 300 Patients with Whole-Genome Sequencing and Lifetime Electronic Health Records.Desiderata for computable representations of electronic health records-driven phenotype algorithms.Acceptance of Asthma Pharmacogenetic Study by Children and Adults The role of nonverbal and verbal communication in a multimedia informed consent process.Genome- and phenome-wide analyses of cardiac conduction identifies markers of arrhythmia risk.'Born in Michigan? You're in the biobank': engaging population biobank participants through Facebook advertisements.Biobanking for research: a survey of patient population attitudes and understanding Characterization of statin dose response in electronic medical records.Methods for optimizing statistical analyses in pharmacogenomics research Why do participants enroll in population biobank studies? A systematic literature review.Establishing and managing a periodontal biobank for research: the sharing of experience.Reducing Clinical Noise for Body Mass Index Measures Due to Unit and Transcription Errors in the Electronic Health Record.The genetics of drug efficacy: opportunities and challenges.Participants' Understanding of Informed Consent for Biobanking: A Systematic Review.

P2860

Q27007693-5E77B292-83AB-4438-8C62-2F17DDBF713E Q27010348-7B44C835-AEE2-443E-AB81-CFE1140F3945 Q27010377-E090D590-2659-4F14-90CD-7EB973FE0C9C Q28079485-C62F6035-534E-465A-8EEE-37BD86FC88CE Q28602677-C88F9884-3D8E-40E8-8211-3D1D70F1AEEA Q28648163-EA79C662-EDA2-4D03-8249-CDE11771BEEC Q28709472-247CE561-6CA6-4EA5-A942-D5E16213C7DF Q28742793-9609F8C1-6858-45F6-A597-5DAD3122B375 Q28749646-14B19F20-3C36-4442-8D7D-505AE4961241 Q30418104-7BEE002F-5A78-4D7A-B700-435EA4A0A01B Q31058146-DC47EDAE-EA2D-4CDB-B445-DD0357A2B94A Q31157016-50704FB9-ABFC-4E34-B185-52EB0171CFBB Q33455578-FE575355-6ADD-4C4C-8AC2-897EC7ADED33 Q33632534-E168F9E9-7934-4127-9FF2-61B6E44C36C2 Q33683972-578700F7-0975-4E11-9C1D-B22B00CF97E2 Q33869885-FA2C9D44-BB3B-4423-9A9F-F07A47BC7E72 Q34156904-F44C79BB-2407-42D0-A571-9B439F882D39 Q34603471-70655D69-2556-4D60-8EB7-AB4AF9B92057 Q34625764-98CE7FAD-A030-4C88-94FD-B03AFB677217 Q34960752-8A7A8D2F-99AD-4B6F-8F5B-114F589C64B1 Q35110013-CD23A694-714B-43A3-ADA0-6E334631234B Q35263924-74DFD96D-5DEF-419B-AE20-5AA52F40C219 Q35556385-3889F96B-441C-4230-AAE0-7CF3EA504149 Q35842182-F65DBEA5-02F9-4C24-B336-489D7CA7F92C Q35997343-DCE5DA3E-6FE5-47F9-9CA9-5FED4D189A03 Q36210731-8D349C4C-CF0B-4935-B14F-BA82CEA6A5AE Q36216271-71C1FA51-4CB1-42A3-BE9F-608382ED8BC2 Q36265667-D1EFEDB7-500F-477C-8C11-9C720EFC1818 Q36734679-C332D932-E41F-47E2-8CA4-0A5E6704DA0F Q36782961-C0A1B2EA-DD07-4FD7-8175-55D1BEFD224E Q37020400-E910BFE9-6B66-430C-8047-77C1CC05E5A4 Q37126406-61F416E8-5A02-4195-89AA-C657B78F7299 Q37171559-7DC90428-A313-46D0-8582-442DA06CB435 Q37620582-83EE8DF3-A991-4BA3-9EE8-785FD7D38F57 Q37707119-164D8EC2-3A7D-4C14-ACB1-D53B7F1C8859 Q38068936-B580F15C-8444-45CC-9540-505675DE3AB6 Q38220332-DB44D813-E4C8-4555-9569-0D04615C5AC1 Q38621177-3096C51B-0A0F-4186-A106-B0A9DD28ACFD Q38773033-49534294-1C3F-4588-8F70-3275CB007535 Q39458929-534EFB97-0918-4BA9-B05C-A7F5F20DEFF0

P2860

Community consultation and communication for a population-based DNA biobank: the Marshfield clinic personalized medicine research project

http://www.wikidata.org/entity/Q28756483

description

2008 nî lūn-bûn

@nan

2008 թուականի Դեկտեմբերին հրատարակուած գիտական յօդուած

@hyw

2008 թվականի դեկտեմբերին հրատարակված գիտական հոդված

@hy

2008年の論文

@ja

2008年論文

@yue

2008年論文

@zh-hant

2008年論文

@zh-hk

2008年論文

@zh-mo

2008年論文

@zh-tw

2008年论文

@wuu

name

Community consultation and com ...... ized medicine research project

@ast

Community consultation and com ...... ized medicine research project

@en

Community consultation and com ...... ized medicine research project

@nl

type

label

Community consultation and com ...... ized medicine research project

@ast

Community consultation and com ...... ized medicine research project

@en

Community consultation and com ...... ized medicine research project

@nl

prefLabel

Community consultation and com ...... ized medicine research project

@ast

Community consultation and com ...... ized medicine research project

@en

Community consultation and com ...... ized medicine research project

@nl

P1433

Q28756483-E6AAEE87-F9DE-4D75-9B2B-6C44295D99B1

P1476

Q28756483-4832133F-8DC8-4039-B552-7D274333012F

P2093

Q28756483-650C0FDB-4DD8-4C38-AFC1-8061B9DCF938

Q28756483-6540C45F-46FB-4DA5-870A-12F4208DFDB9

Q28756483-BF32A3FA-40F1-4DC5-8623-8504CC488287

Q28756483-F6C06B5F-D03A-4BB7-885E-8EA5E71560C8

P2860

Q28756483-04FBB887-4BB5-4CAC-95E9-C2DE57F34F1A

Q28756483-13324955-C932-467B-9D32-D052541F37C7

Q28756483-15534AAC-91C5-42D0-A6C3-961D18F123BB

Q28756483-3A77E07D-C108-4FA1-A11D-427F8FF27925

Q28756483-465A19BD-3504-47D4-A6B5-2F6C4482C579

Q28756483-78DA13BE-4C5D-4B29-A021-AE198E7F349B

Q28756483-853C1EEB-C3E9-4B98-A0F5-4779DDDBED57

Q28756483-B3A0A034-1020-47B9-9D95-08DA85BA37A0

Q28756483-C0EE7DC6-4B65-4CBE-9C07-3A7AE637AB62

Q28756483-C3123A96-D9AC-4421-8880-D08C2DB6BE88

P304

Q28756483-33C3833B-9F9E-4806-975B-A8BC41266A8F

P31

Q28756483-3D598E27-ACBB-47EE-9623-6F1AF8A29C11

P356

Q28756483-EB914800-0288-4955-ACAF-24E40BA7B0D2

P407

Q28756483-505BE596-DE6E-4849-81AE-54915F378B93

P433

Q28756483-16BF7E58-528E-4E60-A6FA-B47759124DE4

P478

Q28756483-C64BF8C1-0208-4E10-AB6C-D753B6793B88

P50

Q28756483-7D3A1A6A-58A1-4456-92C8-85998FDB79D3

P577

Q28756483-4EB0616B-0AE8-4AF5-B8E0-90F412CB63C3

P5875

Q28756483-C03E847A-C6E5-4B5C-B11C-920CB57A64DD

P698

Q28756483-A1043078-2E6C-4BFC-8630-513C929509DC

P921

Q28756483-AB27B475-8C11-408A-9C80-1A2AB2708871

P932

Q28756483-0A6CF354-990B-42D5-B229-DF47D6C0A8B0

P356

P1433

American Journal of Medical Genetics Part A

P1476

Community consultation and com ...... ized medicine research project

@en

P2093

Donna Chapman-Stone

http://www.w3.org/2001/XMLSchema#string

Norman Fost

http://www.w3.org/2001/XMLSchema#string

Philip F Giampietro

http://www.w3.org/2001/XMLSchema#string

Teresa Derfus

http://www.w3.org/2001/XMLSchema#string

P2860

A vision for the future of genomics research

Payment of clinical research subjects.

Monitoring ethical, legal, and social issues in developing population genetic databases.

Informed consent and subject motivation to participate in a large, population-based genomics study: the Marshfield Clinic Personalized Medicine Research Project.

Community engagement in genetic research: results of the first public consultation for the Quebec CARTaGENE project.

Community engagement and informed consent in the International HapMap project.

What's the price of a research subject? Approaches to payment for research participation.

Public willingness to participate in and public opinions about genetic variation research: a review of the literature

Undue Inducement: Nonsense on Stilts?

Gather Ye Shibboleths While Ye May

P304

3026-33

http://www.w3.org/2001/XMLSchema#string

P31

scholarly article

P356

10.1002/AJMG.A.32559

http://www.w3.org/2001/XMLSchema#string

P407

P433

23

http://www.w3.org/2001/XMLSchema#string

P478

146A

http://www.w3.org/2001/XMLSchema#string

P50

Catherine A. McCarty

P577

2008-12-01T00:00:00Z

http://www.w3.org/2001/XMLSchema#dateTime

P5875

23470614

http://www.w3.org/2001/XMLSchema#string

P698

19006210

http://www.w3.org/2001/XMLSchema#string

P921

P932

2588646

http://www.w3.org/2001/XMLSchema#string