Reasons for participating and genetic information needs among racially and ethnically diverse biobank participants: a focus group study - Test2 - elhamkhani - TriplyDB

Reasons for participating and genetic information needs among racially and ethnically diverse biobank participants: a focus group study

Reasons for participating and genetic information needs among racially and ethnically diverse biobank participants: a focus group study

http://www.wikidata.org/entity/Q35263924

about

Stakeholder engagement: a key component of integrating genomic information into electronic health records Genetic research participation in a young adult community sample Recruiting ethnic minority participants to a clinical trial: a qualitative study.Genetic Testing Awareness and Attitudes among Latinos: Exploring Shared Perceptions and Gender-Based Differences Potential bias in the bank: what distinguishes refusers, nonresponders and participants in a clinic-based biobank?Recruiting underserved mothers to medical research: findings from North Carolina Perceptions of African-American health professionals and community members on the participation of children and pregnant women in genetic research.Engaging diverse populations about biospecimen donation for cancer research The design and conduct of a community-based registry and biorepository: a focus on cardiometabolic health in Latinos.Neglected ethical issues in biobank management: Results from a U.S. study Attitudes of African-American parents about biobank participation and return of results for themselves and their children Improving a Case-Control Study of Multiple Sclerosis Using Formative Research.Genetic and lifestyle causal beliefs about obesity and associated diseases among ethnically diverse patients: a structured interview study.ClinLabGeneticist: a tool for clinical management of genetic variants from whole exome sequencing in clinical genetic laboratories.A loss of function variant in CASP7 protects against Alzheimer's disease in homozygous APOE ε4 allele carriers.Demographic differences in willingness to provide broad and narrow consent for biobank research.Engaging African-Americans about biobanks and the return of research results.A trade secret model for genomic biobanking.Building the Partners HealthCare Biobank at Partners Personalized Medicine: Informed Consent, Return of Research Results, Recruitment Lessons and Operational Considerations.Characterizing biobank organizations in the U.S.: results from a national survey Sociocultural variation in attitudes toward use of genetic information and participation in genetic research by race in the United States: implications for precision medicine Willingness to participate in genomics research and desire for personal results among underrepresented minority patients: a structured interview study.Future of biobanks - bigger, longer, and more dimensional.Enhancing the participation of african americans in health-related genetic research: findings of a collaborative academic and community-based research study.How, who, and when: preferences for delivery of genome sequencing results among women diagnosed with breast cancer at a young age.Perceptions regarding genetic testing in populations at risk for nephropathy.Association of acculturation, nativity, and years living in the United States with biobanking among individuals of Mexican descent.Evaluation of cortisol and telomere length measurements in ethnically diverse women with breast cancer using culturally sensitive methods Why do participants enroll in population biobank studies? A systematic literature review.Promoting healthy dietary behaviour through personalised nutrition: technology push or technology pull?Barriers and Strategies to Participation in Tissue Research Among African-American Men.Overcoming challenges to meaningful informed consent for whole genome sequencing in pediatric cancer research.If We Would Only Ask: How Henrietta Lacks Continues to Teach Us About Perceptions of Research and Genetic Research Among African Americans Today.Deliberative Discussion Focus Groups.Development and Validation of the Biomedical Research Trust Scale (BRTS) in English and Spanish.Inclusion of diverse populations in genomic research and health services: Genomix workshop report."Trust is not something you can reclaim easily": patenting in the field of direct-to-consumer genetic testing.Bridging the Gap: Racial concordance as a strategy to increase African American participation in breast cancer research.Enrolling Genomics Research Participants through a Clinical Setting: the Impact of Existing Clinical Relationships on Informed Consent and Expectations for Return of Research Results.Participants' Accounts on Their Decision to Join a Cohort Study With an Attached Biobank: A Qualitative Content Analysis Study Within Two German Studies.

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Reasons for participating and genetic information needs among racially and ethnically diverse biobank participants: a focus group study

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2011 nî lūn-bûn

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2011年の論文

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Journal of Community Genetics

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Carol R Horowitz

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Community consultation and communication for a population-based DNA biobank: the Marshfield clinic personalized medicine research project

Association analysis in african americans of European-derived type 2 diabetes single nucleotide polymorphisms from whole-genome association studies.

Using thematic analysis in psychology

Public and biobank participant attitudes toward genetic research participation and data sharing

Racial/ethnic differences in association of fasting glucose-associated genomic loci with fasting glucose, HOMA-B, and impaired fasting glucose in the U.S. adult population

Understandings of basic genetics in the United States: results from a national survey of black and white men and women

Strong association of socioeconomic status with genetic ancestry in Latinos: implications for admixture studies of type 2 diabetes

Development of a large-scale de-identified DNA biobank to enable personalized medicine.

Exploring the public understanding of basic genetic concepts.

Informed consent and subject motivation to participate in a large, population-based genomics study: the Marshfield Clinic Personalized Medicine Research Project.

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