Disease-specific quality-of-life measurement tools for haemophilia patients.
about
Health-related quality of life questionnaires in individuals with haemophilia: a systematic review of their measurement properties.Psychometric properties of the Greek Haem-A-QoL for measuring quality of life in Greek haemophilia patients.Need for Prophylactic Treatment in Adult Haemophilia A PatientsAdherence to treatment regimen and bleeding rates in a prospective cohort of youth and young adults on low-dose daily prophylaxis for severe hemophilia A.Quality of life assessment in clinical practice in haemophilia treatment.Quality of life and sports activities in patients with haemophilia.Primary prophylaxis in children with haemophilia.Recommendations for assessment, monitoring and follow-up of patients with haemophilia.Beyond patient benefit: clinical development in hemophilia.Process and experience of cross-cultural adaptation of a quality of life measure (CHO-KLAT) for boys with haemophilia in Brazil.An overview of current trends and gaps in patient-reported outcome measures used in haemophilia.Cross-cultural adaptation and linguistic validation of age-group-specific haemophilia patient-reported outcome (PRO) instruments for patients and parents.Assessments of outcome in haemophilia - what is the added value of QoL tools?Health-related quality of life in Egyptian children and adolescents with hemophilia A.Quantifying adherence to treatment and its relationship to quality of life in a well-characterized haemophilia population.The impact of joint range of motion limitations on health-related quality of life in patients with haemophilia A: a prospective study.Adherence to prophylaxis and quality of life in children and adolescents with severe haemophilia A.Health-Related Quality of Life and Association With Arthropathy in Greek Patients with Hemophilia.Quality of life in paediatric haemophilia A patients.A prospective study of health-related quality of life of boys with severe haemophilia A in China: comparing on-demand to prophylaxis treatment.The Haemo-QoL Index: developing a short measure for health-related quality of life assessment in children and adolescents with haemophilia.Optimization of home treatment in haemophilia: effects of transmural support by a haemophilia nurse on adherence and quality of life.Hemophilia-Specific Quality of Life Index (Haemo-QoL and Haem-A-QoL questionnaires) of children and adults: result of a single center from Turkey.The outcomes of haemophilia and its treatment: why we need a core set.Quality of life in haemophilia.Quality of life in haemophilia A: Hemophilia Utilization Group Study Va (HUGS-Va).Psychometric field study of the new haemophilia quality of life questionnaire for adults: the 'Hemofilia-QoL'.The Patient Reported Outcomes, Burdens and Experiences (PROBE) Project: development and evaluation of a questionnaire assessing patient reported outcomes in people with haemophilia.
P2860
Q30234720-E6B39AE9-BC04-4446-8B4C-A39A6007CAC7Q33634745-7A487738-0B74-4C4F-B420-63D746FC212DQ34139334-52EE1B77-1ECF-40D7-8135-982C1B04671AQ36189452-4BD7926C-4310-49D8-B793-B0DE5F682ED2Q36473028-A9FC126E-D8BB-4BE0-B5C0-8FC4646D8EB7Q36904933-713B0769-629F-440D-8A7C-57EAF7B99699Q37119644-4192449B-0E8F-41DB-8105-E0961BD9FE16Q37944947-69F53E1E-2A41-48E4-BC2A-91CCAB4F8454Q38006844-09B05BE3-EDC5-48B8-A36E-B6C4CF3E2CA1Q38115806-0BF0159E-07F1-4E91-941E-15ADB19565EEQ38223329-2EA2DAB1-A101-48A1-9AD3-3781030083E1Q38461005-CA856505-6642-4B90-B2DC-BD5C6F1E32EEQ38511447-4035151B-EEC2-4034-BB22-0FB270BF05F7Q39510884-1016816C-87E7-40D4-B81E-D04BBFFC83B9Q40172564-04CFA147-2BE8-46C7-8FE9-A244FECDD413Q41432599-42EB30C9-6294-48FE-BDEB-A547DE7C7D9DQ41483187-1E1C4F24-E32B-4829-A5A8-81F0BCD576A4Q42695890-8D5E5A6D-25B3-403E-A71D-D6C029BEEEEDQ43510432-D74684D1-5D6E-4DE9-B759-4EDC9D790CF2Q44871316-0F25BA53-3825-4E89-965D-8F75AFB308DDQ45859632-2CE84FFE-BED8-4E6F-99B8-1A28B994548DQ45861239-CB8B425D-D12B-4E22-ABE9-FBB54B5B0159Q45862045-39473CB5-0F92-4FD5-ACA2-65A091DA4526Q45869886-51A6E13C-8E37-485E-ABF3-E3F158A53CF1Q45877931-0D3960BF-74C6-405C-8AE1-F89E543707DFQ45878568-B46D322F-08B8-48AE-A1B3-7D42ED3AE280Q45887799-EFAAE3AA-4EB7-4E8C-8DB2-F6B54BA55A80Q52677982-E743C414-9A23-48E0-A793-23784F315B32
P2860
Disease-specific quality-of-life measurement tools for haemophilia patients.
description
2004 nî lūn-bûn
@nan
2004年の論文
@ja
2004年論文
@yue
2004年論文
@zh-hant
2004年論文
@zh-hk
2004年論文
@zh-mo
2004年論文
@zh-tw
2004年论文
@wuu
2004年论文
@zh
2004年论文
@zh-cn
name
Disease-specific quality-of-life measurement tools for haemophilia patients.
@ast
Disease-specific quality-of-life measurement tools for haemophilia patients.
@en
type
label
Disease-specific quality-of-life measurement tools for haemophilia patients.
@ast
Disease-specific quality-of-life measurement tools for haemophilia patients.
@en
prefLabel
Disease-specific quality-of-life measurement tools for haemophilia patients.
@ast
Disease-specific quality-of-life measurement tools for haemophilia patients.
@en
P2093
P2860
P1433
P1476
Disease-specific quality-of-life measurement tools for haemophilia patients
@en
P2093
Lopatina EG
Von Mackensen S
P2860
P356
10.1111/J.1365-2516.2004.01004.X
P478
10 Suppl 4
P50
P577
2004-10-01T00:00:00Z