Pilot testing of the 'Haemo-QoL' quality of life questionnaire for haemophiliac children in six European countries.
about
The European DISABKIDS project: development of seven condition-specific modules to measure health related quality of life in children and adolescentsHealth-related quality of life questionnaires in individuals with haemophilia: a systematic review of their measurement properties.The effect of an exercise intervention on aerobic fitness, strength and quality of life in children with haemophilia (ACTRN012605000224628).Content comparison of haemophilia specific patient-rated outcome measures with the international classification of functioning, disability and health (ICF, ICF-CY).Health-related quality of life as outcome parameter in haemophilia treatment.Outcome measures in haemophilia: more than just factor levels.Quality of life assessment in haemophilia.Disease-specific quality-of-life measurement tools for haemophilia patients.Quality of life assessment in clinical practice in haemophilia treatment.Recommendations for assessment, monitoring and follow-up of patients with haemophilia.Outcome measures in haemophilia: a systematic review.An overview of current trends and gaps in patient-reported outcome measures used in haemophilia.Cross-cultural adaptation and linguistic validation of age-group-specific haemophilia patient-reported outcome (PRO) instruments for patients and parents.Outcome measures for adult and pediatric hemophilia patients with inhibitors.Recognizing the need for personalization of haemophilia patient-reported outcomes in the prophylaxis era.Low dose prophylaxis in Tunisian children with haemophilia.Health-related quality of life in Egyptian children and adolescents with hemophilia A.The effect of yoga on the quality of life in the children and adolescents with haemophilia.Adherence to prophylaxis and quality of life in children and adolescents with severe haemophilia A.Reliability of patient-reported outcome instruments in US adults with hemophilia: the Pain, Functional Impairment and Quality of life (P-FiQ) study.Issues in the measurement of quality of life in hemophilia.Quality of life in paediatric haemophilia A patients.Comparing two measures of quality of life for children with haemophilia: the CHO-KLAT and the Haemo-QoL.The Haemo-QoL Index: developing a short measure for health-related quality of life assessment in children and adolescents with haemophilia.Optimization of home treatment in haemophilia: effects of transmural support by a haemophilia nurse on adherence and quality of life.Prospective controlled studies on prophylaxis: an Italian approach.Hemophilia-Specific Quality of Life Index (Haemo-QoL and Haem-A-QoL questionnaires) of children and adults: result of a single center from Turkey.Effectiveness of an educational intervention of physiotherapy in parents of children with haemophilia.International cross-cultural validation study of the Canadian haemophilia outcomes: kids' life assessment tool.Parents of children with haemophilia--a transforming experience.Health status and health-related quality of life of children with haemophilia from six West European countries.Quality of life in haemophilia A: Hemophilia Utilization Group Study Va (HUGS-Va).Economic challenges in haemophilia.An exploration of health-related quality of life in adults with haemophilia--a qualitative perspective.
P2860
Q25256853-9487B768-DCB6-4479-86F0-6403C62E35A9Q30234720-875F5C3F-E3F9-49F3-8C03-80FEB816AD6FQ33245039-8E930623-7DDD-4658-9AEE-78745C95A317Q34498533-8D987054-DD25-4995-96F5-704B5877AC01Q35112449-19C4F905-C7A9-40A4-9DBF-9FC54E576907Q35676998-987A0FE9-DEFC-405E-A741-72B98391DE4FQ35677000-B536C91E-119F-496B-A1DA-F57B6136BB15Q35915643-6B4E92C9-0EC8-4248-9278-349FBA7CCFD3Q36473028-49783954-28CC-49FF-844B-49C62A755F6EQ37944947-C21DEC2A-93BF-4BE0-A15D-DCEB961B9F54Q38222571-195B797D-8F20-4AC5-93EB-E70F63560C92Q38223329-E0D576E0-3FD2-416A-B86B-EFED6C22C4EFQ38461005-4FA5842A-5262-444C-B756-5679E6BC778AQ38884504-1ACC557D-29BB-47B2-BA5B-A1BCEB34DBFEQ38942895-C7DF9CAD-1175-406D-993A-9C55A16D9A77Q39030128-7F4AA148-9CF6-41F4-A3E8-F87CA2219A1EQ39510884-9DCE63FD-CC0A-4AC9-994D-C544CED6DDF7Q40905925-20074EE3-6D6C-4CD0-B038-9A0E6C21D9A1Q41483187-905C0F55-0B56-4E24-87F6-E9828481482DQ42364463-43449589-DBFB-4A91-A42B-D5EB93E54376Q42880424-7479371E-33EE-49BD-BA79-544125B1E00DQ43510432-EFCEF020-8E0B-45DF-820D-DD4A7BC279DAQ45186524-864A0571-1E54-408F-BD5E-AB2FD84E9665Q45859632-9B0156BA-4D96-41B8-8FA2-8F1FF3EE8CEBQ45861239-D39669E3-5198-4235-B9AA-106281CE202FQ45861803-0A5AF17D-B16C-4263-A59D-5E5F7AB550F1Q45862045-368A3D31-0D24-4D0A-BB07-020E79CCDEB7Q45864446-6B5FFAD5-B8D8-4B9A-80E0-0ADD2885E51BQ45870967-C2DD5B63-09A5-4B64-87DF-6F061AE14625Q45871258-94B0BF45-F57E-498A-A7B9-5066EB28FCC7Q45873268-1FA9899B-0FCC-42AB-B591-F5E0E0BB33FDQ45878568-5D069B8A-B3AA-4DA7-9C6F-63B432913C5AQ45880697-C91FD88D-BF3B-480E-AB44-AA2665B211C8Q45882457-62751360-48F8-4A7C-BAE0-E5EEA1A4EF41
P2860
Pilot testing of the 'Haemo-QoL' quality of life questionnaire for haemophiliac children in six European countries.
description
2002 nî lūn-bûn
@nan
2002年の論文
@ja
2002年論文
@yue
2002年論文
@zh-hant
2002年論文
@zh-hk
2002年論文
@zh-mo
2002年論文
@zh-tw
2002年论文
@wuu
2002年论文
@zh
2002年论文
@zh-cn
name
Pilot testing of the 'Haemo-Qo ...... ren in six European countries.
@en
Pilot testing of the 'Haemo-Qo ...... ren in six European countries.
@nl
type
label
Pilot testing of the 'Haemo-Qo ...... ren in six European countries.
@en
Pilot testing of the 'Haemo-Qo ...... ren in six European countries.
@nl
prefLabel
Pilot testing of the 'Haemo-Qo ...... ren in six European countries.
@en
Pilot testing of the 'Haemo-Qo ...... ren in six European countries.
@nl
P2093
P2860
P1433
P1476
Pilot testing of the 'Haemo-Qo ...... ren in six European countries.
@en
P2093
Bullinger M
Petersen C
Ravens-Sieberer U
Vicariot M
van den Berg M
P2860
P356
10.1046/J.1351-8216.2001.114.DOC.X
P478
P577
2002-03-01T00:00:00Z