An overview of current trends and gaps in patient-reported outcome measures used in haemophilia.

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Zhoubo plus uncaria tincture in the treatment of cerebral concussion sequelae.Social/economic costs and quality of life in patients with haemophilia in Europe.Recognizing the need for personalization of haemophilia patient-reported outcomes in the prophylaxis era.

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An overview of current trends and gaps in patient-reported outcome measures used in haemophilia.

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An overview of current trends ...... measures used in haemophilia.

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An overview of current trends ...... measures used in haemophilia.

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An overview of current trends ...... measures used in haemophilia.

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An overview of current trends ...... measures used in haemophilia.

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Emuella Flood

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Jennifer Pocoski

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Katy Benjamin

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Lisa A Michaels

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Rahul Sasane

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P2860

Should prophylaxis be used in adolescent and adult patients with severe haemophilia? An European survey of practice and outcome data.

Disease-specific quality-of-life measurement tools for haemophilia patients.

Measuring patient-reported outcomes in haemophilia clinical research.

Challenges of patient-reported outcome assessment in hemophilia care—a state of the art review.

Recommendations for assessment, monitoring and follow-up of patients with haemophilia.

Psychosocial aspects of haemophilia: a systematic review of methodologies and findings.

Pilot testing of the 'Haemo-QoL' quality of life questionnaire for haemophiliac children in six European countries.

Quality of life in adult patients with haemophilia--a single centre experience from Sweden.

Measuring health state preferences for hemophilia: development of a disease-specific utility instrument.

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1-8

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scholarly article

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10.1111/EJH.12323

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93 Suppl 75

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2014-06-01T00:00:00Z

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24966140

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hemophilia

An overview of current trends and gaps in patient-reported outcome measures used in haemophilia.

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P2860

P2860

An overview of current trends and gaps in patient-reported outcome measures used in haemophilia.

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