Health status and health-related quality of life of children with haemophilia from six West European countries.
about
Shared topics on the experience of people with haemophilia living in the UK and the USA and the influence of individual and contextual variables: Results from the HERO qualitative study.Psychometric properties of the Greek Haem-A-QoL for measuring quality of life in Greek haemophilia patients.The social burden and quality of life of patients with haemophilia in Italy.Content comparison of haemophilia specific patient-rated outcome measures with the international classification of functioning, disability and health (ICF, ICF-CY).Outcome measures monitoring physical function in children with haemophilia: a systematic review.Evidence-based treatment of haemophilia.Disease-specific quality-of-life measurement tools for haemophilia patients.Health-Related Quality of Life in Children and Adolescents with Hereditary Bleeding Disorders and in Children and Adolescents with Stroke: Cross-Sectional Comparison to Siblings and Peers.Self-management and skills acquisition in boys with haemophilia.Home treatment of haemophilia patients with inhibitors.The burden of bleeding in haemophilia: is one bleed too many?Advancing personalized care in hemophilia A: ten years' experience with an advanced category antihemophilic factor prepared using a plasma/albumin-free method.Outcome measures in haemophilia: a systematic review.On-demand treatment in persons with severe haemophilia.An overview of current trends and gaps in patient-reported outcome measures used in haemophilia.Current management of the hemophilic child: a demanding interlocutor. Quality of life and adequate cost-efficacy analysis.Study of physical function in adolescents with haemophilia: The SO-FIT study.Home treatment of haemarthrosis with recombinant activated factor VII in patients with haemophilia A or B and inhibitors: experience from developing countries.Future characteristics of bypassing agents to improve care of hemophilia inhibitor patients: an economic and health-related quality of life perspective.Health-related quality of life in Egyptian children and adolescents with hemophilia A.Psychometric field testing of the HemoLatin-QoL questionnaire.Transfusion-transmitted infections in haemophilia patientsQuality of life in paediatric haemophilia A patients.Health-related quality of life in haemophilia patients with inhibitors and their caregivers.A prospective study of health-related quality of life of boys with severe haemophilia A in China: comparing on-demand to prophylaxis treatment.A computer-based model to assess costs associated with the use of factor VIII and factor IX one-stage and chromogenic activity assays.A variation of the Nijmegen-Bethesda assay using heat or a novel heat/cold pretreatment for the detection of FIX inhibitors in the presence of residual FIX activity.The Haemo-QoL Index: developing a short measure for health-related quality of life assessment in children and adolescents with haemophilia.Optimization of home treatment in haemophilia: effects of transmural support by a haemophilia nurse on adherence and quality of life.Physical fitness, functional ability and quality of life in children with severe haemophilia: a pilot study.Hemophilia-Specific Quality of Life Index (Haemo-QoL and Haem-A-QoL questionnaires) of children and adults: result of a single center from Turkey.Health-related quality of life in chronic coagulation disorders.Orthopaedic evaluation in children with severe haemophilia A or B submitted to primary prophylaxis therapy in a coagulopathy treatment centre.A randomized clinical trial of prophylaxis in children with hemophilia A (the ESPRIT Study).International cross-cultural validation study of the Canadian haemophilia outcomes: kids' life assessment tool.Changing pattern of care of boys with haemophilia in western European centres.Quality of Life in Children and Adolescents With Rare Bleeding Disorders in Southern Iran.
P2860
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P2860
Health status and health-related quality of life of children with haemophilia from six West European countries.
description
2004 nî lūn-bûn
@nan
2004年の論文
@ja
2004年学术文章
@wuu
2004年学术文章
@zh
2004年学术文章
@zh-cn
2004年学术文章
@zh-hans
2004年学术文章
@zh-my
2004年学术文章
@zh-sg
2004年學術文章
@yue
2004年學術文章
@zh-hant
name
Health status and health-relat ...... m six West European countries.
@en
Health status and health-relat ...... m six West European countries.
@nl
type
label
Health status and health-relat ...... m six West European countries.
@en
Health status and health-relat ...... m six West European countries.
@nl
prefLabel
Health status and health-relat ...... m six West European countries.
@en
Health status and health-relat ...... m six West European countries.
@nl
P2093
P2860
P1433
P1476
Health status and health-relat ...... m six West European countries.
@en
P2093
A Gringeri
E Kellermann
G Auerswald
Haemo-QoL Study
M Bullinger
M Vicariot
P2860
P356
10.1111/J.1355-0691.2004.00876.X
P478
10 Suppl 1
P577
2004-03-01T00:00:00Z